Amiodarone has many side effects so just be cautious on this drug. I can hardly go out in the sun bc I burn to a crisp. Also, blood work is a must, watch for any changes in your skin i.e. skin...
I see my Hematologist tomorrow so I'm talking with him about my feet hurting. I also get blood work so hoping red blood count has come up…fingers crossed. I would call my Humira nurse anyway….they...
Taking Humira increases your chance of getting infections & lymphoma. Do you have any signs of infection…sore throat, coughing, sinus infection? Usually your lymph nodes closes to an infection will...
i checked my appointment calendar today & see that I have appointment this Thursday with my Hematologist/Oncologist so will see what he has to say. But I have found that sometimes the doctors don't...
For several years now I have been having GI bleeding which has lead to several (14) blood infusions & 3 hospital stays. Last year after my hospital stay my GI doctor put me on Humira pen injection,...
I have been on Humira pens every other week for over a year now. The first dose (4 shots) hurt like hell. Now they still hurt somewhat but not nearly as bad as the first dose. I do leave it out for...
I have always used epsom salt sitz baths after each bowel movement when my rectum has a flare up. I use one of those sitz bath things that goes on your toilet. Now I take detox baths using 1/4 cup of...
I was started on Humira about 2 months ago because of GI bleeding from my Crohn's (have been bleeding off & on for several years). I have not seen any bleeding since the Humira kicked in but have...
I was on large doses of Prednisone for several years when I was in my 20's. By the age of 36, I was dx. with the beginnings of cataracts. At age 44 had cataract surgery & have had no problems with...
I am so sorry…may you find comfort & peace in those around you during this difficult time...
Usually dark blood is coming higher up than hemmies…they are bright red. I just out of hospital with GI bleed…dark red with clogs not bright red. Had 5 units blood & Hgb 5.5. Have you had your blood...
I am in the same boat…have been fighting not to go Humira for a couple of years now. But was in the hospital for GI bleed with 5 units blood & Hgb 5.5. Doctor said it is time, so I am in the stage of...
I was DX with Crohn's in 1978, had colon resection in 1983 with 13 inches of small intestines removed. Was in remission for 23 yrs w/o medications. In 2006, started seeing dark stools, SOB with HGB...
I have had a fissure with tunneling for a about 1 1/2 years. I am seeing a homeopathy doctor who has been working with me for about a year to get this thing to heal up. The tunneling is completely...
I do not post much here but do stop in when I am having a problem like now. Was sadden to see the hurt feelings here. I can see where at times mod need a break but maybe in the future it would be...
Hello, I am from Birmingham, Al & the UAB system is very good. I don't see their doctors because I have been seeing my GI doctor since 1978 & we have a good working relationship. I live in Florida...
I use a 21/7 tablet...Se-Vate (Repliva). FERROUS ASPARTO GLYCINATE 70 mg Ferrous Fumarate 81 mg with Succinic acid, Vit.c, Vit. C complex, Folic acid & Vit. B12. It has worked wonders for me & I...
I have been living with Crohn's for 30+ years & it never gets easier! Friends still don't understand what I have to do to try to live normally. When you know where every bathroom is in the mall or...
I noticed that when I first started on 9 mg daily that I was irritable. Am now down to 3 mg daily but still seem to get stressed easier & having trouble sleeping. Also my gums are red & irritated....
Hi, Have not been to the Cleveland Clinic in Ohio but here is a website http://my.clevelandclinic.org/patients/accommodations/lodging.aspx that might help. Good luck...
I take Se-Vate 21/7 tabs. It is a Rx but have not had any problems with taking it. This and Entocort EC are the only things that are keeping my Hgb up. It containes Ferrous Asparto Glycinte 70 mg...
Hi, I have also been having trouble with bleeding but seems to be a slow leak that we can't find. (I'm not seeing any blood or in stool specimens) My hgb has been as low as 6.3 & iron level 3. Had...
Hi, I was dx. in 1978 & in & out hospital until 1983 when i had 13 inches distal ileum removed. Have been in remission since then with occasional flare ups requiring meds. but no hospitalization....
Poppy100, Before I was dx with Crohn's in 1978, I too was bleeding with almost every bowel movement. I was in nursing school at the time with lots of stress. I was going between diarrhea &...
Yes, yes yes to all your symptoms! My Hgb had gotten down to 6.3 & I couldn't walk from bedroom to kitchen with getting SOB & light headed. Had 4 units of blood at that time. I haven't had the iron...
Hello, My obstruction was from inflammation of the small intestine also. I would go on a liquid diet, increase my prednisone & wait for the pain to go away. After doing this several times & my gut...
I have been battling with anemia for 3 years now. Am now on iron pill Repliva 24/7 which along with Entocort EC seems to be working. I try to eat a diet high in iron also. My Hgb had gotten down to...
I saw a difference in about a week using 3mg 3 tabs daily. Am down to 3 mg 2 tabs daily & hope to decrease dosage to 3 mg daily this month,...
No but I am seeing my GI doctor this month so should get blood work. And i found out they are NOT D/C Repliva. Which is good for me as i am doing well on it & the Entocort EC....
I am going thru the same thing. Started in 2006 with Hgb 6.3 Hct 20.3 Vitamin B12 241 sl. low Ferritin 3 very low. Had 4 units blood which only got my Hgb 10.9. Had all the tests....small bowel...
Hello, I am new to the forum but I also am over weight. I was dx. in 1978 had resection 13 inches in 1983. Have been in & out remission since then. Have had ulcers from mouth to ...... I am on...