Hi Faith, ive had LPR for a year now, tried prilosec, lanzoprazole, nexium, reglan, domperidone, carafate but i felt no relief, i've seen a lot of GI's some say my problem is not even reflux others...
is it safe to say that I have no problem with my UES or LES?...only a manometry can give you the answer how were you diagnosed with lpr? ph monitoring/impedance? i've search everywhere for a cure for...
im pretty desperate so im gonna try it for a month and see what happens i cant find much info online, i was looking for some "success stories" but i've found like 2 ppl who say melatonin cured or...
this is interesting http://www.ncbi.nlm.nih.gov/pubmed/21695583 Edit, I linked you website......:)...
a dr sent me this: "Proton pump inhibitors such as Nexium, increase the pH of the refluxate, but do not stop reflux events from occurring. It is now known that certain bile acids are in fact more...
i showed him my tests that say i have weakly acidic reflux and he said surgery wasnt performed in these type of cases, that surgery was for ppl with barretts, so i left his office with no solution,...
@DeFluxx my symptoms didn't change after 2 months with Omeprazole either, give it a little more time, if you don't see/feel any changes after 3/6 months the treatment obviously failed and you need...
"She confused my duodenum with my esophagus, and when I called her on it, she told me I was wrong, and that the duodenum was the junction of the stomach and esophagus. ?!??" doctors say some really...
Have you seen an ENT doctor? id get a laryngoscopy done to see if there's any reflux related damage...
"My symptoms simply don't seem to be improving." classic LPR story, where exactly in your larynx is the damage?...
now read this http://www.ncbi.nlm.nih.gov/pubmed/19370381...
hi Denise, that normal range you talk about is a DeMeester score right? what about non acid or weakly acidic reflux, did u ever have a MII-ph test done?...
@PPI-LESS i found some info that say that LES pressure before surgery doesn't affect the final result, meaning you can have a normal pressure and still benefit from surgery cause a Nissen doesn't...
thanks for the responses you guys, keep them coming, btw did/do you all had/have LPR or GERD?...
@Chuck_T i understand your point but just because something is rare doesn't mean you wont end up with cancer, even if there's a slight possiblity i think one should be careful, these chemicals...
btw PPI-LESS do all ppi's give you side effects?...
did you all have a weak LES before surgery?...
@ppi-less malignancies take like 10-20 years to develop. I've had LPR for 9 months now, i started seeing doctors 2 months after my symptoms started. I have weakly acidic reflux according to MII-ph...
"Endostim claims to have run some clinical trials in India and Chile ." lol what, im from Chile i didn't know anything about this....
According to Dr. Koufman LPR can cause cancer if severe and left untreated for many years, pepsin causes laryngeal cell damage independent of the ph of the refluxate that's why ppi's dont work. we...
do you know if it requires low les pressure?...
does anyone know if you can have the procedure done with motility inside of normal limits? my LES pressure is 12.7 so idk if im a candidate. anyone knows what's the criteria for the surgery?...
@PPI-LESS yeah i doubt they will be willing to operate on you with those manometry results (it happened to me, normal les, no one wants to touch me, that's why im looking for a different solution but...
i have a white tongue too but i dont know if it's related to my LPR, must be....
@chuck t which address did u use to contact dr koufman, i tried her website and an aol email address but no response either...
have you talked with a surgeon yet? i don't think they would be willing to perform antireflux surgery on a person with a normal motility, if they are please let me know cause i'll buy the plane...
no but i really want to, but i can't find a dr who wants to give it to me, here they don't even know the connection Baclofen has with reflux, doctors here (Chile) don't even believe weakly acidic...
@Chuck T, i couldn't agree more, the bile is definitely reaching my throat since i see it everyday when i spit, GI's just don't care, i have to see one tomorrow, he'll probably say im imagining...
i would travel anywhere to get rid of this damn disease but i dont have the money....
yeah i did it was all normal, i say this is bile reflux too but since im not a "volume refluxer" i had a negative bilitec, that's the test the measures bile reflux but only in the esophagus, i had a...
same here, ent docs keep mentioning surgery but gi's say no my symptoms are -hoarseness -throat clearing -acid taste at times aswell -sore throat -i spit yellow saliva in the morning my pressure is...
you and i, are in the same situation, -LPR -normal manometry -abnormal ph test (impedance in my case) -not a "volume" refluxer" either that *does* mean that you are not a candidate, no surgeon will...
i've tried sleeping sittting up actually, i was able to sleep but still would spit bile in the morning and wake up with a sore throat...
@miketx yeah i have an abnormal Impedance test (weakly acidic reflux)...
doctor/surgeon did it, normal was 12mmhg to 25 mmhg on my test, the surgeon obviously didnt want to operate...
i have a 12.7 mmhg LES pressure, have ppi's worked for you?...
all these things fail -nexium (40mg x2) -prilosec (double dose) -carafate -gaviscon advance -vinegar -baking soda -lifting the bed -diet -not eating before bed -prokinetics -you are not a nissen...
this is interesting i spit bile every morning, actually everytime i sleep even if i take a nap if i sleep for more than 3 hours i'll be spitting bile when i wake up, i just wish there was a way to...
i'm sorry that you have to go through all this, i hope you can find a solution, i used to have a lot of problems with allergy when i was a kid, i had asthma too and had to get shots every week i was...
yeah i read that about inhalers one too, things like nasonex can also cause hoarseness, im guessing you really need the inhalers but maybe if you stop using them you wouldnt be hoarse anymore. What's...
@dencha if you have that same bar i have in the back of your larynx you definitely have reflux, i've been told by several ENTs that the only cause of that inflammation its reflux, i hope it's not...
oh it's ok, what do the ENT's say about your hoarseness...
do you have any pictures of your larynx you can send me?...
@denise yeah i had all the tests ph test:normal, bilimetry:normal impedance:abnormal for weakly acidic reflux episodes, this is definitely reflux, not acid though probably pepsin or bile . What did...
is not the redness i's the swelling at the posterior part bhind the vocal folds, nothing seems to stop it...
anyone's larynx look like this? http://i53.tinypic.com/xer291.jpg ppi's wont diminish it...
Doctors dont care, at least not the ones i've seen, my larynx is swollen but they dont care, ENT's recognize it's reflux what's causing it but Gi doctors say it's impossible i have reflux in my...
i had a normal les (12.7 mmHg) normal was 12-25 mmhg so im low-normal, i've seen these numbers change in other ppl's manometries, im thinking since im low normal and i can only tell i reflux while...
hi5 msro i lost my voice thanks to LPR aswell i was a singer before that, now all i have left is a weak breathy voice, ppi's don't work, sucralfate doesn't work, prokinetics don't work, impedance...
@mudmagnetmum this explains it better, dr. koufman's blog http://www.silent-reflux.com/2010/01/04/thirty-year-perspective-on-laryngopharyngeal-reflux-lpr-from-silence-to-omnipresence/ if they know...