My NF surgery story was complicated by not knowing everything that was wrong with me. Looking back my surgery went as it should and I needed the surgery. I was tested with a manometry study and...
Hi again, Can't stay long but I'm dropping in to say hello and to tell those of you who remember me that we finally have some answers. I have been formally diagnosed through biopsy with Sjogren's...
I was screened by a Tulsa GI doc to determine for sure that the surgery would benefit me and then was operated on in my home town by my surgeon who referred me to Tulsa for the screening. His clinic...
At this point it's more helpful to me to deal with things just with the doctors and my local support group. Never know what the future holds but I do thank you all for the kind welcome. I'd never...
Thanks, Lynda. Yes, it's springtime in Oklahoma and we're experiencing rain like you wouldn't believe but everything is in bloom outside my bay window and so far no tornadoes in our area. Nice to...
Hindsight is 20/20 and it's obvious now looking back on the last 25 or so years that all the mini-symptoms and conditions I've had to deal with separately were auto-immune related. I only have one...
[b]Greetings to all the GERD and reflux patients and a special hello to those of you who remember me. I haven't been around for a very long time because I needed time with good doctors who knew what...
Thanks, Cindy. I've saved your email address and will write you. I just got home from the GI and was very impressed with his interest and concern. He has scheduled the dilation for this Friday and...
This is very interesting reading and I too would like to hear back from Jacket about how he did/is doing on Elavil. My surgeon actually suggested it and we gave it the good old college try but...
Back in the hospital on Friday the 18th for a second stretch of the NF site. Still no relief and the first stretch didn't last but for a couple of days. My esophagus was short according to the...
Another one to toss around. http://en.wikipedia.org/wiki/Serotonin I used to play down the importance of serotonin. I don't think I'll do that anymore. I never knew how much serotonin played a part...
Hi Ash, If this is an EGD you're referring to, to me they're a piece of cake and the "time-out" during the test is a nice little time you get to really relax. I've had a ton of the done. In my...
Finally figuring out some things with the help of my docs and lots and lots of research. It's like everyone here keeps telling us: we have two brains and one of them is not too smart at times. Guess...
Not trying or wanting to discourage anyone from NF/surgery to correct these symptoms but I still have them after surgery. I'll see my GI on the 14th to discuss both Vagus nerve complications from a...
My surgeon actually tried me on a low dose of an old tricyclic AD as per medical studies he pointed me to where a low dose helped some people with upper GI digestive issues. It didn't work for me but...
I had the fluttering/breathing problems/chest pressure both before and after NF. I've had all the tests to rule out all the above mentioned heart concerns and I have none of them. The Vagus nerve is...
Still doesn't explain my good friend's two children who were born with GERD problems one of which is still in the hospital as we speak. Her third child is fine. Neither of those two children born...
Mock, We're all just guessing anyway and about so many things. I appreciated that game more when I was younger - when I thought I had more time. Searching for answers these days from doctors young...
Precisely what I was saying in my post above. The only thing I can add is that I know for sure that the only thing worse than the acid reflux is the side effects from all the pills they want to give...
Hello ~ I can't help but reply to the comments above. I wrote a long reply and decided to abbreviate it. I have a friend who has 3 lovely children. The last 2 were born with GI issues and required NF...
Hubby and I are on a "quest" it seems. He's a good "researcher" and I'm very grateful. He found some interesting information about low levels of minerals following gastro surgery especially with...
Darryl, you're young and should do better soon and if not you've got time to find the answers. We all have the time really - if we only stick with it and look for the answers. We called the GI this...
Thought this was good because after many years of a problem like GERD/IBS or post surgical issues due to GERD sometimes our families are hurting as much as we are....
Darryl, Add the burning feeling back and I know just how you feel. I'm at 3 months in about a week and I still can't eat much or sleep well. I've lost close to 50 lbs and can only eat about 500...
MMM, I couldn't agree with you more - so very true. Rita...
Bill, that's one of the other strange things going on with me as well only the sweet taste lasts until I eat again and then it's okay for a while and comes back till I eat again. I don't think people...
I'll let you know. Rita :)...
Bill, did you read the link about NERD and hypersensitive esophagus I posted on another link on Sunday? The surgeon suggested a very low dose of Elavil (5 or 10 mg once a day) to help with the...
Thanks, Ash. It's a journey I guess. It didn't start yesterday and it won't end tomorrow and I am terribly glad I've finally figured that out. lol I do wish now I had gone to a university medical...
Check this one out. My surgeon now suspects NERD and maybe LPR even after Nissen: http://www.nature.com/gimo/contents/pt1/full/gimo42.html Rita...
Very interesting to me since I've had the surgery for GERD and still have the minty thing going on. It is such a strange thing to describe to someone even to the GI doc and the surgeon who did my...
Bill could you tell me the name of your surgeon at the U of Iowa, please. If you need to tell me privately you can email me back. Ahn, I wish you well with your decision. My only comment to you would...
*Now the surgeon thinks I've had NERD as well as GERD all along. I didn't know that was possible and I don't know anything about NERD. Hi again, I promised I'd drop back around after seeking more...
Sorry to hear this Ash. I've been hiding myself away due to all my "reflux" symptoms post-NF but yours was the first post I saw when I logged in. I still do badly with every food I take in except for...
The GI did call back and said I still had acid in my esophagus during the EGD. He doubled my Dexilant for 2 weeks to try to heal the esophagitis and the gastritis as well. I think my surgery should...
Surgeon says everything is fine. We'll be checking with someone soon if we hear "wait and see" again this afternoon from the GI. I can't taste my food, swallowing is a problem, it gets stuck in spots...
The local GI called early this morning with the biopsy reports which were benign. The nurse was surprised the dilation only lasted about 36 hours. She said I do still have acid and esophagitis of...
I'm so glad you're going to get the incision looked at. You're doing so well I know you'd hate to have anything go wrong now. So glad you're staying on top of things. I guess we'll begin tomorrow...
One thing that surprised me when I put on a ton of weight about 2 years ago was that I was on several medications for GERD/reflux before NF. At first I was also on a medication for anxiety/depression...
Astepro is about the best I've found. It doesn't stop the reflux associated sinus drip but it helps me. I wish you luck....
I'm willing to wait and see. It hurt my throat pretty badly having it dilated this time and I don't want to go through it again. It's kind of the same thing as the acid reflux going away with the NF....
There was a big difference the day I had the dilation but not so much now. I still coughed and spit up this morning quite a lot and felt the pressure of my dinner from last night. I guess I'll be...
Hi Cindy - I would never have had the dilation if my food went through fast enough but it didn't and the pain was unbearable and the intra-esophageal reflux for 7 of my 9 weeks post-op was making me...
Thanks everyone! I'm going to do my best to take this last procedure one day at a time and be grateful that I'm better just today. I've become a little jaded in that so many people who had the...
Hi Diane - Good to hear you got to communicate about everything with your doctor. I had to have my wrap stretched yesterday at the hospital and had to go without food and my PPI for a while and I had...
Thanks guys - I had lunch and dinner and it went down and didn't hang up on the wrap. I had a good evening for the first time since long before the surgery and slept better last night with much less...
Hi Cindy, I had my NF wrap dilated today and so far so good. It may not last but at this point I'll take relief just about anyway I can get it. It's nice to be able to breathe and swallow without...
It did appear to go well today. The GI loosened my wrap, found more gastritis and inflammation and irritation just above the wrap where all the pain was located as well as all the other strictures...
Just got home about an hour ago from the hospital and my GI's watchful eye. My LIST was laying on my abdomen and he glanced at it and then picked it up and began to read and started to ask questions....