Oh BTW - for the older timers here, I've changed my username from PPI-LESS to aciphexo. Quick summary: I struggled with my reflux without PPIs for a long time (you can see my posts under PPI-LESS). I...
Looks like we have company: http://www.reuters.com/article/2014/12/06/us-usa-obama-throat-idUSKBN0JK0RA20141206 ...
Hello GroverCat, I am extremely intrigued by Endostim. I'd researched this a couple of years back and had even cold called one of Endostim's management executives - who at that time had indicated...
I must have missed this post! I occasionally peek in here at HW .. but more like couple of times a month or so . Today - I was searching for something else when I landed on this post! Thanks for...
I've tried a lot of different types of diets over the last 2 years and unfortunately the diet does not seem to make any difference to me. The progress I think really is because I've been able to take...
Yes, anything that changes the way "the system" works is not going to be good for the body in the long run. I feel though that with GERD - it is either the meds or the surgery (some people can...
Thanks ARM .. I know this may very well be a temporary phase, but I'll take it anyday .. I also plan to take Ca/Mg supplements to avoid any long term absorption problems from the PPIs....
I haven't posted in this forum for a while, but wanted to update everyone on my situation. For those who don't know me: In March 2011, I started to experience terrible symptoms from LPR/GERD - and...
GERD is a complex condition. For some people, it is triggered by foods. However, in my case (and looks like even in your case), foods in general don't trigger it. Other than the trigger, some foods...
Some people do get the dizziness symptom. I got achiness in knees followed by tingling sensation all over in my body on prilosec. http://www.askapatient.com is a good site to refer to for side...
Still thinking if I can give either Nissen or Toupet a shot ... am thinking of April 2013 ... ... the more I read about Toupet and Nissen, the more I get confused which path is the best for me :(...
I could not take the PPIs at all during the first 1 1/2 years of GERD due to side effects but have recently started to tolerate Aciphex - so I am on it daily now (40mg/day). They definitely keep my...
Yes, I agree with Denise. Don't go with TIF if you are paying for it out of your own pocket. You may also want to read these two threads that covers my situation:...
I can tolerate Aciphex the best. All other PPIs tend to cause much more severe side effects. Elavil and Aciphex combination is what I can tolerate the best - so I am on this cocktail now and trying...
No clear diagnosis - but a bit of both: LPR and GERD. More GERD symptoms now - LPR symptoms have gone down considerably since mid 2011....
I was on: 20mg/night elavil and 20mg/morning aciphex and the symptoms were better but not fully under control ... So, after consulting my GI, I've recently up'd the dosage to: 20mg/night elavil and...
Interesting study of using Rikkunsh ito for GERD. I've been trying to search online .. but am unable to find information on where and how to obtain Rikkunsh ito. Any pointers on how to obtain this...
How much aciphex are you on?...
Kevinla - If I understand your question correctly, you are referring to GERD medications and procedures: 0. Natural ways: diet change, bed inclination/elevation etc. 1. H2 blockers (zantac, pepcid,...
Hi Kitt - I have symptoms of LPR"ish" GERD (I had severe throat symptoms when all this started in Feb 2011 - and my pH tests showed more reflux in the top than at the bottom of the esophagus). I seem...
Yes, the symptoms kept improving for me. However, I believe my GERD symptoms were improving because I could stay on the PPI (aciphex) - which I am able to do 'cause of amitryptiline (I think). Elavil...
As some of you may know, PPIs give me side effects. aciphex is the best one I can tolerate ... but it too had given me side effects (although much lesser than the other PPIs) - after being on it for...
1) Since you are in NYC, have you considered seeing Dr. Jamie Koufman? She specializes in voice+reflux related issues:...
I would like to hear from those of us who've had Nissen about the pros and cons of going with the partial (toupet) or the full (360) wrap. My surgeon thinks that since I don't have hiatal hernia and...
My symptoms these days without any medications are: - heartburn (uneasy, rising of the acid feeling around the les area) - sometimes bitter burning taste in the mouth/tongue/throat area With aciphex...
No - I did not ask him specifically about LPR. However, yes in general the success rate of any type of fundoplication (nissen, toupet or tif) is lower for patients with LPR-only symptoms. As you know...
Met another surgeon today and asked his opinion on Esophyx TIF vs. Nissen. He said I am comparing apples and oranges. He is of the opinion that in terms of the risks of possible side effects...
Hi Fiery1 - just curious - as to how large your hernia was? Did the surgeon indicate to you that patients with large hernias may not be good candidates for TIF?...
My new GI has put me on amitriptyline. It seems to be helping me with my ability to handle PPI side effects. So, I am taking 10mg/night of amitriptyline followed by 20mg/day of Aciphex in the morning...
Yes, PPI side effects for me follow this trajectory: - starts with tingling of the nerves around the knees, ankles - followed by anxiety like symptoms - followed by depression like symptoms so - yes,...
Not so good news .. even though I was thinking of upping the daily dose, I decided to stay with 20mg/day. However, even on 20mg/day - I started to notice the beginnings of the dreaded side effects...
Hello all .. To summarize my story: I get side effects on PPIs and H2-blockers (different kinds of side effects) - so have been managing my GERD without them for the last year or so. My GERD is not...
Hi dp61 - can you share the name of the hospital and the surgeon in Boston, MA who performed your Nissen? Thanks....
Thanks. I will ask for the suspension from my doctor and will also try it out. My symptoms are much less pronounced on sulcrafate so far - except for a brief period of a few hours yesterday....
I had tried Sucralfate last year a couple of times .. and it had ended up giving me bloating back then (almost 14 months back). Last week, I was (wistfully :)) - going through the stack of my meds:...
Summary of my situation: GERD symptoms not too bad, but bother me constantly. I can not take any medications (they start giving me terrible side effects). Nissen seems too invasive for my situation...
I don't think that even the Obamacare will help solve my problems with my insurance company :( So, looks like if I have to get the TIF done, I will have to self-pay ($14K). It is a big amount, but I...
Sorry to hear. Will you go back to get an endoscopy done to see what is going on with the TIF sutures? Will you attempt a redo or think about getting a Nissen instead?...
I've been trying to keep track of how my GERD waxes and wanes. On a scale of 0-5 where 0-5 are low-to-high levels of symptoms I experience, I feel I get patterns such as these: 1, 1, 1, 2, 2, 5, 1,...
I'd paid out of pocket for a 8 week acupuncture treatment last summer. In my case, I used to feel relief immediately after the treatment for a few hours - but the symptoms would return pretty much...
In my research/experience, here are a couple of ways food / diet relates with GERD: #1 If certain foods trigger your GERD, then you can avoid them and you can manage your symptoms that way. #2 If...
There was an effort (a small trial/study) around this research - resulting in a product that Dr. Koufman was/is trying to bring to market called "peptigon". If you google on "peptigon" - you'll come...
Sorry, just saw this thread here ... Yes, I saw Dr. Koufman last summer 3 times (May-August 2011). This thread here captures some of my experiences with her:...
My current symptoms situation is as follows: Some days I feel 80-90% normal (some bitterness and a little bit of burning feeling in the mouth, a low heartburn flicker in the chest). I may feel like...
Thanks. From what I've read so far, one has to be on the PPIs for 6 months or more to be able to qualify for this study and therefore I won't be able to qualify for this trial. Further, not being...
Speedy - it took me close to 3 months (and several hours of writing letters and collecting data to present) - to complete the appeals process for TIF. Unless it can be proven that these surgeries...
The external reviewer has also denied my appeal to provide coverage for TIF. They are essentially saying that: 1) the added risks associated with Nissen such as advanced age, multiple medical...
I do watch my diet - but it is not as rigid as it used to be last year (when my throat used to hurt with anything acidic going down). Further, I am unable to correlate any changes in the diet to the...
I haven't posted here in a while .... My GERD is not as bad these days. It does flare up 2 or 3 times a week, but with Gaviscon at night, it seems to go down and gives me some relief. I am now in two...
Hi Hopeitworks - I've been working with a GI and a surgeon for the past several months (and have had several tests during the last year). They think that an anatomical correction will help me. They...