Thank you for the response....
Good evening, So My 13 year old daughter has had tics for the last 2 years. She jerks her head to the side. When I looked up tics it says that as long as it doesn't interfere with normal activities...
He has had 3 endo's done and the 1st had eosinophils 36 times hfp under the microscope which is not normal. There should be none. The GI dr told me he had lymphocytes in his esophogus but he doesn't...
Thank you. Yes, she mentioned a colonoscopy. She said the only other disease that you see so many lymphocytes in the esoogogus is this disease. My son has been through a lot. I just want it to be...
I have been to drs for the last 2 years for my son. He complained about pain after eating, he'll be on the toilet with pain and has had 3 endoscopies. The 1st endo had 36hfp eosinophils so they...
Is there anyone on here that has a child with EOE? Need advice...
No, sorry I have not....
This is my second go around with the Lyme. I had or shall I say have Neuro Lyme disease. I changed drs and this one is a lot more thorough. I have a lot of brain fog and when I try to concentrate I...
Hi, He is a very nice Dr. and his office staff are very helpful. He did two sonograms right away on my 1st visit and had my blood sent to 3 different labs including Igenix....
I just got my blood results back from ID dr. I was more concerned with my Lyme tests and found out that I have Epstein Barr/Mono. The tests are as follows: EBV Ab VCA, IgG 248.0 EBV Nuclear Antigen...
So I got my blood work from Igenix which came back Positive for IGM. Can someone help me figure this out please 18 kda ++ **23-25 kda IND 28 kda - 30 kda - **31 kda + **34 kda - **39 kda + **41 kda...
Hi Michael, I can tell you that I went out to socialize and had a few drinks. The next day I woke up and lost the hearing in my left ear. A week later I started to stutter. It took 3 weeks for the...
The 1st time it was at the hospital so I don't know where they send it out to. The last 2 times was LabCorp....
I can tell you from my experience is that I went from 5 positive bands at the hospital and then totally negative after 4 days on Doxy a week later (4 pills a day that did nothing for my symptoms)....
Do you think having Igenix testing is more accurate than my regular lab work?...
I had 5 bands positive last september and diagnosed with neuro lyme. Just needed info on those 2 bands. Thanks for the responses. Next step is back to Dr....
Just got back the actual lab results IGM p41 IGM p23 Both came back present abnormal. Do these two bands have any specific link together?...
Hi Chapelle, I never realized that I didn't post my email, sorry. I have since updated my profile. Thanks a lot....
As for me Neuro Lyme took my hearing away in my left ear (but with prednisone, returned). It has made me stutter which I never had. Along with Bells Palsy, vertigo, sensitivity to light, couldn't...
Thanks so much....
oral antibiotics did nothing for my symptoms. The IV was great. I thought I needed more but he said I was cured so I felt defeated. I want to see someone who is familiar with this disease, totally...
I was diagnosed with Neurological Lyme in September. After IV antibiotics for 28 days I felt 100xs better. I still had one symptom, stuttering. The ID dr told me I was cured and that I should see a...
Thanks a lot Beth & Traveler, I am torn between is it just time I need to heal or am I still sick. I am still fatigued and I find it hard to do tasks that are complicated or need to be thought out....
I was diagnosed with Neuro Lyme In September. I was given IV Antibiotics for 28 days. I am 100 times better than before and all symptoms are gone except I still have a slight stutter. I can NOT find...
Hey Sunny I had my MRI done 2 weeks ago and it was the worst thing I have ever been through in my life. I have Neuro Lyme and they wanted to make sure it wasn't in my spine. From the moment they took...
Hi Frizz I am new to this forum myself. I totally lost the hearing in my left ear in a matter of hours. I had the facial numbness, tingle in the lower lip, slight tremor, heavy wobbly head (almost...
Tomorrow makes a month that I am sick and every week I have a new symptom. I was lucky enough to be on vacation the last 3 weeks but this week I am out sick. If they give me the IV who knows when I...
Thanks for all the input :) Sunny as far as the IV goes I believe they would have done it but I had already filled my prescription for dox and so he is giving me up until Monday for the stutter to go...
The infectious disease dr and my GP believe that I have Lyme and are treating me with 4 Dox pills a day. The Neuro Dr is the one questioning it. As for the spinal tap he is saying that if it comes...
Thanks Sooverthis. I had been on the steroids for 3 weeks and even though it brought back most of my hearing, I felt it was making my other symptoms worse. Will check 1st post....
It started August 13th with a throat infection. Seen Dr. on Aug 19th and was told I had the beginning of perio tonsil abscess. I was given 875mg antibiotics and 40 mg of prednisone. By Aug 23 I woke...