Another thing that wasn't mentioned yet, when your grandson had his endoscopy, ask if they did a biopsy for eosinophilic esophagitis. It's a food allergy that causes throat swelling which leads to...
There is an excellent Facebook group for Achalasia that is quite active and full of a wide range of people who have been dealing with it for decades to recently diagnosed. You'll need a Facebook...
61Impala, digestive bitters are basically a variety of bitter herbs made into a tincture (so it's basically an alcoholic herbal liquid). You take several drops or more of bitters a half hour before...
Gunner, When you see the Nurse Practitioner, I'd discuss the Eosinophilic Esophagitis (EOE). EOE has a lot of similar symptoms to GERD/LPR, and sometimes a PPI works(maybe 50% for some people), and...
riverpeep A lot of doctors aren't even aware of EOE, so they do not even look in biopsies for it when you have an endoscopy, so yes he/she could miss it. It's best to talk to your doctor to make sure...
Trouble swallowing for an allergy (particularly a food allergy) can be caused by Eosinophilic Esophagitis (EOE). The only way to tell for sure if it's from this is from a biopsy done by an endoscopy....
Hey TabbyLou. I've had similar problems for sure. PPI did not agree with me (which my family doctor put me on), and my GI doctor took me off of them. Have you seen a GI specialist? It could be low...
I'd agree with that this sounds like Candida/fungal infection. Google SIFO, which stands for Small Intestine Fungal Overgrowth. I believe I have something similar (called SIBO where the B stands for...
Hi Kat0707. My diet is very bland and basic due to my swallowing troubles and a lack of interest in food. I have two smoothies and two soups a day that add up to 2,000 calories (I need to keep my...
Hey Kat0707 - I'm in a similar boat in that I have to boil all my veggies (for me my throat muscles don't work very well). Fruit has caused me problems, so I just avoid it. I can't take a multi...
gggmom66, you might have SIBO (small intestine bacteria overgrowth. I was bloated for months to the point where I could only get 600 calories in me. I tried the fast tract diet by Norm Robbilard, and...
Hopefully it works! I think it will, I used to burp after a sip of water as well. There's a wonderful facebook support group as well for the fast tract diet. Lots of people have had problems with...
The Fast Tract Diet by Norm Robbilard helped with my burping. The theory is that certain foods cause Sibo (small intestine bacteria overgrowth). This bacteria overgrowth ferments any food that you...
I had pretty bad anxiety when I was on my PPI/Zantac for a month. The anxiety lasted for 2-3 months after, and I felt very weak. Much like you, I never had anxiety ever before, then it hit me hard...
Hey there, I am having difficult swallowing too, but in my case, my manomentry showed that my muscles were working slow. Whereas yours are working fine. One thing that stood out in your case is that...
Hey Diane, I'd recommend trying out a different PPI as well, or perhaps an over the counter like Zantac and see if you get relief. I was in a similar position, my understanding is that the tightening...
Minimus67, thank you for this epic post! Fascinating reading! I live in Canada, and could never afford to visit Kaufaman or Aviv, but I was on their diet (bought their books) for a few months with...
Hey flintmode, I'm experiencing similar symptoms right now. I had the barium swallow (showed reflux), and mamontry test (getting my results in 3 weeks from the specialist after having it done at the...
Jake, I feel for you man. I was in a similar position six months ago where I went from a bit of reflux to the pain/pressure problem in your stomach and loss of appetite. The PPI made things much...
Hey Akhilesh99, Yeah, fighting a virus or bacterial attack would cause chills. I'm convinced my GERD was caused by SIBO, which is small intestinal bacteria overgrowth. I feel it caused my GERD as...
Boymom32 I have trouble swallowing too, and never experienced heartburn. I'm still in the long process of getting tested (in Canada). I had a mamontry test, but have to wait another month (3 months...
Yes, I definitely got chills. I don't get them as bad now. My understanding is that when your stomach is digesting food, or it is in distress, it pulls in all the blood from the extremities (like...
Hi Bethanyr0, I got the throat tightness quite a bit for months. I know how troublesome it is. It certainly caused me a lot of anxiety. For me, some days, it felt like someone was choking me. I...
Ayoppp, I'm having the same problem. I've had it for 4 months now. I saw a doctor right away and was diagnosed with acid reflux. I was given a ppi as treatment but it made things far worse for me...
Hi Dianetr, I'm glad you are getting in 1800 calories, that's really good. I understand you wanting to get in 2400, but listen to your body and be sure to take it slow. Maybe aim for 2000 calories...
Hi Dianetr, Wow, I just read your other post, and it's exactly what was happening to me. I still do struggle, but I have improved greatly. When I was on the PPI I struggled to get in 800 calories, as...
Happy Birthday tomorrow and good luck with your results! I had my mamontry test last week, and I get my results back Aug 24th, so I understand your anxiety. But hey, we both made it through the test...
Dianetr, I took a PPI for a month, and experienced delayed gastric emptying one week in. I stayed on the PPI at my Dr's request, but after dropping 20 pounds in a month, I stopped as I was dying on...
Great news Makana! So happy to hear you are feeling good!...
Hi Makana26. I'm not scheduled for the surgery yet. I'm still in the investigative stages. I had the barium swallow (it showed reflux), the endoscopy (it showed an agitated esophogus), a catscan and...
I have no advice as I haven't had the surgery, but you will be in my prayers Makana26. It's natural to be nervous, but you will heal and you will get better! Take it slow each day and don't rush the...
k1m11, you've got some great strategies as well! Since you told me about John Berman, I've been trying the water thing out (waiting a half hour) and my GERD feels like it's improving a bit. I should...
ALEXAPLAN I'm having the same problem as well (and have been on a soup/smoothie diet for three months), so you're not an oddball. I need to sip a tiny bit of water with food to comfortably get it...
Thanks K1m11 for that link to youtube. Interesting stuff there! In one video he says you have to get your nervous system in check, and I whole hardheartedly agree. With the panic attacks it's hard to...
Hey PodMan, I had more bloating and other symptoms (which I won't list as I don't want to put any ideas in anyone's head) on my PPIs. I stayed on them for a month, and did not improve with my...
Hi Bythesa, I'm glad you're feeling much better, and got off those pills. I'm not an anti-pill person, but if you feel much better without them, then it's worth not taking them. I got my problems...
Hey Art, I don't think the alkaline food matters once it's in your stomach. Your body will signal enough acid to digest it, and that acid will help signal to keep the valve closed. In my case, I...
From what I've read it takes decades for GERD to lead to cancer. Esophageal Cancer is on the rise, but it is still rare. At your age you have a 0.002% chance of having it. Those are pretty slim odds....
Thank you for the kind words Bythesea! Your kind words have already improved a difficult day. I hope you are doing well too and we can put our GERD behind us forever (with proper diets and lifestyle...
Hey art, I think you're on to something. I had trouble swallowing, and my doctor put me on a PPI. I evaded it and tried Zantac for a bit, and my symptoms got worse, so I moved to a PPI out of fear,...
Hey Silverlining, I'm in Canada as well. Your symptoms sure sound like GERD to me, but it could be other things too. I sure hope your doctor is sending you for some other sort of testing. My doctor...
Mine got way worse. I stayed on my pills for a month thinking it would get better and it was an awful experience that only got worse week after week. I went back to my doctor and he recommended I...
Hi Bungielove Oh hell yeah, I got a ton of panic attacks. I got really bad burping where I felt like I couldn't breathe in. Or I'd get some other new symptom that would set me right off. I'm not one...
Kay, I wouldn't worry about the cancer. It takes decades to develop. Your endoscopy came out clean in terms of cancer, so now you have the opportunity to make changes in your life to ensure you don't...
Hi there, I've been on the strict and clean diet for a month, and I dropped 15 pounds. When I went on PPI's it messed up my digestion so I credit 7 lost pounds to just not being able to get food in...
Hi there, I lost my appetite too when I used Zantac, and it got even worse when I was on PPIs. After being on them for a month I took myself off and my hunger is slowly return as my stomach...
Hi Dee, Thank-you for your response and advice. I'm happy to hear you are moving on past liquids and improving. You are in my thoughts! We will both put this behind us!...
I have swallowing problems too. Got my endoscopy results back (today -two weeks after the endoscopy) and I had a very irritated throat from my biopsy results. Prior to the endoscopy I was on PPIs for...
Hi there, I'm new to the GERD club. I've read lots here already and realize everyone is different. I get scared sometimes as I read threads and never hear positive results. So it's my goal to report...