I have had only one surgery, for Linx, 10 years ago and it has been life changing. It is not perfect and I have mild-to-moderate LPR that causes breathing/sleep issues, but it is a whole lot better...
Hello everyone ! Sorry I've been absconding from these forums. I am back to give you a LINX update 5 years out. Some info first * Linx Journal 1...
I have had the scopes and CAT scan as well. No one ever mentioned anything. Maybe something is wrong with my lungs, I don't know. Is bronchoscopy worth doing in my case ? Here are some possibly...
As someone who has serious breathing problems and diagnosed sleep apnea despite Linx - this information is useful. Thanks for sharing ! Should the stenosis be diagnosable by an ENT ? I've seen a...
Yes, I did feel heartburn too like I mentioned on the other thread. Whatever symptoms you may feel, just pretend you haven't had the surgery for 3 months. Everything will get better in time. GH...
- I don't stay away from any foods, even carbonated drinks are ok. - The dysphagia is really limited to the first few bites of a meal; basically I need to help the first couple of bites along - water...
Hi gramfitz7, I think slicer is the handle on these forums, who got it done way back in 2009. Check his posts. But, to date a lot of implants are past 1 year and quite a few past 2 years. Have never...
Hi shrtcak81, All of this is normal. There are a few journals of Linx recovery that you could read up to gain some confidence. Human body doesn't like surgery but it does recover remarkably given...
Quick update: 4 months post op. Quit PPI 6 weeks ago. - No heartburn - Very occasional hot flashes, the stomach pressure does overpower the Linx sometimes, usually during meals and slightly later -...
JPT, Thanks for the note. Very curious about the atomizer spray and how things have been for you of late. Is your breathing still good ? GH...
8/10 were effective. Complete objective data from my tests are here: http://www.healingwell.com/community/default.aspx?f=45&m=2678370&g=2715635#m2715635 ...
Yep, I was 2 weeks after you. With water, everything goes down, but my eso's strength is the lower end of normal. So, I guess it will stay this way for a while. Breathing, no one is giving me hope at...
I think your hubby is right about it having to come some way :) But I understand your excitement. No heartburn feels great :) 3.5 months now for me. I do get swallowing pain, almost regularly, but...
Hey NDL! Great to hear from you and glad to know you are doing well still. I have come off PPIs too myself, for abt a month now, and haven't felt any heartburn. How is the swallowing ? I still have...
My surgeon told me that Linx may not show up as increased LES pressure. He thinks pH test is the only good way of measuring it (indirectly). I think gastric yield pressure is a better metric than LES...
Tell me about it :) My surgeon suggests wait and see to let healing complete. I've been using alkaline water regularly now and that seems to have been helpful....
The doctor who did the test presumed that non acidic reflux is probably due to some stuff staying above the Linx. We don't have a clear answer. I did expect the LES pressure to be higher and was more...
Update: I am now 3 months post Linx (surgery date: Jan 30). I had a manometry/24 hr test 10 days ago. Objective data first. 24 hr pH test : Numbers pre op and post op #of acidic reflux episodes:Went...
Honeybadger & Sinfrontera, Could you share your pH test breakdown like %time pH > 4 ? Mine was something like 16% (normal is 3% i believe) and my DeMeester was 52. GH...
Sinfrontera, I've felt flashes of hot liquid indicative of stomach acid a couple of times over the past week. I think the pH test will reveal more about the true nature of reflux. My guess ? It is...
GM, Will do. Curious, what is your research telling you about Linx so far ? GH...
Hi GM, After talking to Dr. Lipham, we decided to repeat the battery of tests to assess current reflux conditions. I am expecting the tests to show: Reflux abnormal but highly improved than before....
Another small update: My gastric emptying study seems to be normal. I looked at the raw numbers and it seemed like my stomach was emptying faster if anything. GH...
GM, This is interesting; thanks for sharing. I suppose the radiologists at NYU would have found it on the Barium Swallow test if I had it ? But then again, assumption does no one any good.. I do...
Thanks again, Denise. The other thread http://www.healingwell.com/community/default.aspx?f=45&m=2535955&p=2 seemed to recommend Restech over MII. But, Dr. Pittmann (whom I saw recently) told me that...
GM, I don't know yet. I should call them up and ask about. Do either of the tests leave you with a tube up your nose for the 24 hrs? GH...
Thanks, rockhopper. I contacted Restech to get the list of providers. I will probably get both the tests depending upon insurance coverage. GH...
GM, Thanks for the info. Hoping it goes well. Will keep you posted. GH...
GM, Thanks for the suggestion. How do you know him? Dr. Pittmann suggested that I meet him as well and I scheduled a pH test with him 10 days from now. GH....
I am post Linx for 12 weeks now and going to get testing done as I am still refluxing. I want to get proper LPR tests done, figuring out how high and far the reflux is reaching. Is Restech the way to...
Thanks, Denise. Multi-channel I think typically is dual-channel at least. So, they should be measuring reflux more proximal as well as at the LES. I will ping the Restech thread for comparision. GH...
Just pinging on this to hopefully get suggestions about LPR testing. Is "multichannel intraluminal impedance testing" the way to go ? GH...
I am still refluxing, no doubt. Still on PPIs. Breathing is horrible too, especially after meals. I have written to Dr. Lipham and he suggested a Bravo probe. I think I need a dual probe, however, to...
GM, yes I am on PPI. tracks83: Answers to your questions below. 30th Jan 2013. Yes. Yes. USC Keck by Dr. Lipham. Yes, sphincter was patulous. I think so....
A quick Linx update: I am still refluxing despite the Linx. I am unable to quantify it but it is and uncomfortable amount of reflux some times. Breathing is still very bad. Dysphagia is mild now. I...
@Denise: Thanks for the word of encouragement. I hope they do heal and regenerate. Buts its been very tough... I've been to the ENT. I was told that I had some vocal cord atrophy and a very tight...
I've recently gotten a sleep study which demonstrated apnea. I am yet to get my hands on the report. In addition, I've been told that my tonsils are enlarged, by the sleep medicine doctor. Going to...
NICKUK, Is there a thread with your medical history (like an intro post?) I am curious what all you've tried and how you managed your situation for so long. GH...
All, Thanks for the support, appreciate it. NICKUK, I am not sure about Asthma vs decreased Lung volume. I've rarely read reports of decreased Lung volume in connection with GERD. DO you have any...
Yes, Dysphagia was always accompanied with pain. The esophagus tries to push and push and it doesnt succeed. The body thinks it is choking and it wants to throw up, but the force dissipates by the...
Hi NICKUK, I may have passed the earlier stages having had breathing problems for 5.5 years now. My gut feeling is that reflux is reasonably under control but that there is residual damage to the...
Like I said previously, if it is only LES weakness (GERD with only heartburn and no extraesophageal symptoms), I think Linx is a 9/10. It is unclear if my breathing symptoms are at this point related...
Hi Sinfrontera (Could you explain the handle? its interesting :) ) I think I have a bunch of issues wrong with me making me an outlier. Still, let me try to reason: (1) LES weakness - LINX is, IMHO,...
Sorry haven't checked out this thread for some time now. Day 52 update: Reflux: Minor reflux especially when stretching on an overloaded stomach. Breathing: Still no change (and hence tereible)....
Hey Sinfrontera, Be prepared when you eat out the first few weeks. I've had a stuck situation at a Thai place eating broad noodles. Other than that, you seem to be following the normal recovery. I...
Thank you, GM! I shall try to see Dr. Crawford. GH...
Hi Gastricman, Pardon me for the offtopcid, but do you have any recommendations for GIs in NYC ? I have myself been looking for someone. GH...
Continuing http://www.healingwell.com/community/default.aspx?f=45&m=2630043 following forum guidelines on thread length....
Hi Sinfrontera, Glad you are doing well. Everyone heals differently but I think dysphagia sets in around week 1. Also quitting PPI cold turkey is not recommended. If you don't mind, can you share the...
Sorry, thread update notification doesn't seem to be working. So, having to manually check the boards. Let me know if you have any specific questions. March 18, 2013 Day 49 Benefits from the Linx...