Hey all-- I am checking to see what you guys use for severe fatigue. It's so bad that I feel run down and a simple shopping trip to Trader Joes for $40 worth of groceries leaves me winded and...
I take turmeric with black pepper. I have no issues getting it to absorb and work. I also eat it a few times a week as well. I try to take it "as needed", because long term use is not very...
Yes, I will be. Right now we are exploring my options covered by my terrible high deductible insurance. For now, I am taking high dose d3, lions mane mushroom, baclofen, steroids, and turmeric for...
I agree! That's what I told my sister today. All those years being treated improperly made me more sick. I hope the best for you all as well....
Hey yall, I spent years believing I have fibromyalgia. Even though none of the medications helped, I just believed I had a tough case. Things that worked for me were anti-inflammatories and steroids....
After years of frustration and misdiagnosis, I gave up on my "probable MS" diagnosis. I agreed that maybe I did have fibromyalgia. Turns out I do not. In July, I began driving erratically. I would...
YES. I was coming here to ask the same thing. I get this at least once a year. It last about a month or so, and then it's gone. I too have rushed to the ER to be told it could be breast cancer. That...
Go to a health food store or high quality natural food store, such as Whole Foods. You should be fine with anything you purchase there....
Ha ! I hear ya. One doc, the neurologist advocates cutting all stress in half. I work for a company that is a mix of very slow and then bam, seasonal crazy several times a year. I do customer service...
My Rheumy hates gabapentin. He claims other rheumy's give out like candy, and he's not crazy about it. I have no idea if it will interfere. I do know that you ca NOT take it with tylenol or other...
My employer (10 months) thinks I have diabetes and arthritis only. I've not shared any of my other chronic conditions. I've used all of my sick time ( 2 days) and vacation due to flares that are...
Cilly, That is so kind. I do hope you are able to get coverage. I tried for years to work through my symptoms, and in the end, I realized I truly needed help. Luckily, I have healthcare. Even so,...
I only take high quality suppliments, but be wary. I just recently purchased one from NOW foods, and it lowered my blood sugar to the nth degree, and made me really sick. I am going back on the one...
Melissa, Yes, I have a rheumy, after years of suffering I have a great one. I have not been diagnoesed with Lupus, years ago, my gynecologist suggested that I had it after reviewing tests she had...
I have been diagnosed with both fibro and reactive hypoglacemia. In fact, the hypoglacemia was my first diagnosis, and it's correct. My sugar is crazy, if I do not eat every three hours I suffer....
I have returned to work after being on LTD for four years. I had no choice, my husband's office closed down and either I went back to work or we lost everything. Now that I am working and not home...
Mine turn bright red and blue and white. I have rheynauds. It hurts like crazy, but it's festive. be well....
I take tumeric for arthritis. Has anyone tried it with savella? I could not do traditional anti-inflammatories with savella....
I once had a lot of success with udo's choice oils. It made my flares significantly better. I have arthritis along with the psorasis. It sucks....
I have fibro and psa. The pain is hellish. I take turmeric and it helps some, but not all of the pain. I too, have the chest wall pain. When I read about the MS hug,it is eerily similar. I guess this...
Hey all. I recently returned to work seven months ago, after my Long term disability company dropped me after four years. My husband also suffered a job loss and I was unsure if he'd get a new job as...
So as you guys know from reading( or not) my threads I've got a host of issues, and was recently kicked off of LTD. Now to make things interesting, a recent eye flare took me to eye doc and now I...
I use it for psorarsis (sp) sorry cog fog. It works wonders. It also helps for my fatigue. It's a must in my arsenal. It certainly can not hurt. It's a food....
Hey all. Still on a journey, and it's been a long one. I have not been diagnosed with lupus, but fibro/PSArthritis instead. I have a great rheumy, and he's been very helpful. So here's the deal. Once...
Oh thanks! Just taking one day at a time. Take care as well. L...
Mine are ulcers. I went to the doctor for them. He told me to take vitamin b-12 and they would go away, they did not. But yes, you can have herpes and fibro. They are two distinctly different...
I have it as well. I was told by an old gp that it's inflammation in the chest wall. I find not shaving and sports bras help to a degree. Not sexy, but what the he$$ do I care?...
I am getting worse, but I have osteoarthritis and psoariatic arthritis as well....
My best friend has been bugging me to get my thyroid checked. She has thyroid issues and a lot of our "pains" are the same. Oh boy. Another doc....
oh well, so much for that. I did not take any more just see if it would keep flare at bay. The pain and fatigue are slowly returning. Called rheumy and they told me to take prednisone and keep track...
Sherrine- Thanks for all of your advice and support. Like you I just want a definitive diagnosis, and am willing to let my doc do his job. Thanks. L...
Update--- spoke to nurse at docs office this am. ( one positive ANA here, done at highly respected research hospital in DFW) two negatives afterwards, done at regular lab. Doc wants to keep me on...
So glad you are getting the answers you deserve. I know all too well that this can be a long painful journey. It's filled with frustration, high medical expenses, and in some cases family members...
Oh Sherrine thanks! Yes I agree. This is definitely a step in the right direction. You made me smile with the landscaping story. I cleaned my bath, did two loads of laundry, washed dishes, tons of...
Oh thanks! Yes, it helped tremendously. Yes, I can feel the remnants of the flare this morning, still a wee bit achey here and there, but nothing near the level that I was pre shot. The greatest...
Hi all. I usually am on fibro forum, as I was diagnosed with fibro and psoratic arthritis about two years ago. At one point, they thought I might have Lupus, but I moved and that never went anywhere....
Some antibiotics make me flare. I have to be careful. As for the short trial, why not? We've done so many other things that NEVER worked, and spent tons of money on testing etc. I can not see what...
Oh I agree, I think diagnosing diseases that are so much alike is difficult at best, and in my case and many others take many years. I got lucky. Having a medication such as this work so beautifully...
I know. Our pain is awful. I think it goes without saying that whether I have fibro, or Lupus that our conditions often mimic each other and the pain we live with is awful. I would not wish it on...
Louise, I too have multiple conditions along with fibro. At 45, I was forced to go out on LTD with the Standard. All was humming along well. I fought for SSDI and was unsuccessful. It was primarily...
Last week, in the middle of a really bad flare I became sick what with I thought was a really bad cold. After four days of pain from the flare and severe head ache and jaw pain I went to the local...
I take vitamin d3 200 i.u. and can not use any shampoo with sls. I have to use biolage conditioning balm conditioner. I have sores, and rarely rough patches. I have found taking coconut oil in pill...
I have PSA, had p in my scalp for years. It was initially misdiagnosed and then finally properly diagnosed and treated with steroids. I suffered with pain for years before my new rheumy ( I have...
Ldn is currently being cocktailed with generic wellbutrin and marketed as a weight loss drug. If nothing else, I'd ask for this at the doc. Perhaps It might help. I took wellbutrin and it did help...
YES. I can not shave with certain types of razors, and regular bras with underwires are a no-no. I have to wear sports bars. I've given up on having cleavage, or putting the "girls" on display. When...
Yay. Dang straight. Some good news at last. Whew...
Loring, Thanks. It goes without saying that I had a unseasoned lawyer and doctors who were overworked and uncaring. I have since found new docs and a new lawyer and hope to do better this go round...
I am left completely perplexed. How did anyone "tape" your work? How can a dr throw out a specialist's diagnosis and determine mental illness? You would need a therapist or psychologist to make that...
After four years on LTD, I am being forced to return to work. They figured out a way to cancel it and so they did. I have psoratic arthritis as well. Some days the pain is just out of this world. I...
I never noticed it until my daughter told me that she can tell when I have a flare because I have big dark circles all around my entire eye. I guess you could call it flare face.. :)...