I am praying for you....
I had 2 episodes of posterior-tibial left ft tendonitis with constriction of achilles. Rheumy did not say this was lupus-related. went to an orthopedic and had PT, walking boot x 6 weeks....
Procrit is frequently used for cancer patients, and there are side effects. My rheumatologists asks why I'm on procrit, so I don't think he agrees with the treatment. But iron and frequent...
I have had AI hemolytic anemia for 2 years. My hematologist treats me with weekly procrit ibjections. and my hemoglobin is 9-10....
Dear Mike, I am sorry you are feeling so bad. I Jumped at elective gallbladder surgery in june 2007, and my health deterotiated rapidly. I had to quit a job, I loved, and I wanted desparately to turn...
Dear Tashies, I was diagnosed with AIH in june 2007. My MELD fluctuated between 15 and 20 for about a year. My hepatologist prescribed cellcept, high dose prednisone, lasix, aldactone , and...
There is autoimmune hemolytic anemia and non-immune hemolytic anemia. Mine is autoimmune. Procrit-yeah, i know and am worried about the black box warning , but I was getting transfusions once a week...
Danny, Thanks for your quick response. I'm sorry, I wasn't more clear. The nurse reported the CT findings, as I have a spenorenal shunt, ( my body created) to compensate for portal hypertension. I...
:idea: I had a ct, and the nurse reports I have a splenorenal shunt. and it's no big deal. (I also have hemolytic anemia w/ enlarged spleen). I looked this up on line, and understand it is a way for...
I was on remeron for 6 mo., and though it helped me sleep, I awoke fatigued. Also gained 30 lbs....
Bee, I am so sorry to hear what you are going through. If the infection is cleared up, that will improve your mom's condition. That would help with her ammonia level, as well as lactulose. I know...
Connie, I know how the MELD score is calculated. But, aren't Both (an elevated ammonia level and High MELD score) indicators of how well one's liver is working?...
My friend has had terrible vertigo for over 2 years. She has had every test under the sun, with no diagnosis found . She is 63, also suffers from migraines and depression. One dr. tried klonopin,...
Did it go away? My feet are no longer edematous, thanks to lasix and aldactone. Also, I was curious, have you ever heard of a patient's Meld dropping below 10, and thier ammonia level going sky high?...
:sad: I have AIH and cirrhosis. doing relatively good. But, my feet "burn" after I am on them for over an hour. Does anyone else have this?...
I was diagnosed wih AIH in 2007, at age 45. Hepatologist rx. 3000mg. of cellcept, and high dose prednisone. Meld was 20, bx dignosed cirrhosis. Placed on transplant list. Gradually, my health...
Go to the ER if you are severely short of breath. (dizzy, feel you aren't getting enough ari, pale, bluish lips , cold), Audible wheezing. Best thing is to have a pulse oximeter which clips on your...
Dear Alli, I was diagnosed with hemolytic anemia 2 years ago. and receive weekly pricrit shots. ( my hematologist did a bone marrow bx, which was normal) Problem is same with all auto-immune...
ms. Santos, I had gallbladder surgery in june 2007, and my LFT's became elevated shortly after. A Dr. explained this is seen after general anesthesia. I had never heard this, and I'm an ER nourse....
Hi Bian, I know where your coming from. Took me over 30 years to realize alcohol makes depression so much worse. Join AA, one day at a time, my friend....
Hi Connie, Thanks for the quick response. Your knowledge is invaluable, I'm doing good w/ alcohol, although avoiding all tempting situations. You mentioned I could be overmedicated. Drs. have rx...
Dear Members, I am a new member, although I have been"lurking" and posting occasionally. I hesitate to tell my story for several reasons. But, I so appreciate everyone being so open and honest here...
I know you are right connie, thanks. You are a kind soul to read and answer all these problems....
I have antiphospholipid syndrom, and +MTHFR-both put me at risk for clots. However, my liver disease has kept my blood thin(INR of 1.2) Now nosebleeds have stopped INR is 1 and I'm concerned again...
I have multiple chronic illnesses which have all been dx in last 2 years. The hardest part for me is fatigue, which makes it impossible to work in my field. Feeling sad and isolated. What happens to...
Lynnman, You are smart to quit drinking before it affects your liver, I didn't and was/am a nurse. I am 47 now , had gallbladder removed in june of 2007. After surgery my bili went really high. they...
Desi, I am a new member, and so appreciate your sharing Mike's story. I am a recovering alcoholic, and believe the medical professionals need to treat all patients equally. So sorry for your loss....
No, I was on the list w/ a meld of 20 in 2007. Now, off list w/ meld of 8. I am concerned about taking these meds for so long, but they are working....
oops! that is a meld of 8. and i'm 47,...
I was dx with AIH in the fall of 2007. w/ a meld of 20. Put in transplant list. Rx prednisone, cellcept, lasix , aldactone, lactulose. Have had 2 episodes of encephalopothy, which scared me to death....
Connie, Yes, I fit into a few of the forums. Holidays were rough, but I'm ok. Thanks for asking. I am considering asking a friend (5 yrs sober) to be my sponsor. Do you think that would be a good...
I was diagnosed with autoimmune hepatitis in 2007. 6 mo. later cirrhosis. On pgh. starzl transplant list x 2 years. Highest meld was 20. now 6. off list. Get to a transplant center and find your...
I was diagnosed by a hematologist with APS, and can not take asa or coumadin because of underlying autoimmune hepatitis. The fear is stroke, and in my case bleeding. I have had a "brain bleed" in...
How did you get sober? I am 6 weeks sober, not tempted, but know I will be...holidays will be rough. AA only solution? Help......
I was diagnosed with autoimmune hepatitis in 2007. have been on liver transplant list for 2 years. Then diagnosed with lupus-like/connective tissue disease, ai hemolytic anemia, and APS. Can not take...