Thanks Hep93...
No, I never found out what was wrong with it. My liver tests are still up (but not as bad as they were), I still get the pain, but the nausea isn't as bad. I get it tested every so often, but my...
I'm just wondering what's your usual CRP result? My inflammation markers have never shown anything up until my last flare. They didn't take my ESR, but my CRP was 40 (under 5 is normal) during a...
You're welcome to hi-jack the thread! It was no ones to hi-jack anyway!...
Thanks so much everyone. Joy, I just avoid the sun completely. I think maybe even the heat makes me unwell too. Elbee, that's interesting that you're more Dermatomyositis, I haven't really heard that...
After being unwell for quite sometime, I've finally been diagnosed with UCTD (Undifferentiated Connective Tissue Disease). My symptoms are most like Lupus and Sjogren's Syndrome. I'm on Plaquenil and...
I'm in a similar position. My tests for Lupus, RA, Sjogren's etc are negative and I have a weak positive ANA. My joints swell, fatigue, mouth and eyes are dry, ulcers in my mouth and nose, sun...
They're fine to use if you have an intolerance, but if you have Celiac Disease, they do not prevent damage....
You can have an intolerance/sensitivity to gluten without having positive blood tests for allergies or Celiac Disease. Check out this-...
Thanks. My doctors rely so heavily on the blood tests it just seems like I'm not going to be taken seriously unless they show something. I don't have 4 of the 11 criteria, I think I have 3. I meet...
I've been suffering with a long list of symptoms (joint pain/stiffness/swelling, fatigue, nose and mouth ulcers, rashes (urticaria and petechiae), sun sensitivity, Raynaud's, dry eyes and mouth, nail...
Thanks everyone. I live in New Zealand and we don't have ticks here (as far as I'm aware). I have traveled to Australia but no where rural. I know it's a possibility, but it's extremely unlikely....
Thanks Hugh, I'm on Plaquenil, Doxycycline and Mobic (not this one anymore) because I have some sort of connective tissue disease. My rheumatologist isn't sure what's going on but I have features of...
Thanks Connie. My GP said she's "not happy where things are at" so I guess I'll find out more on Wednesday. It's just pretty shocking and annoying because I am feeling better! Yet my blood tests say...
Sorry to bring up an old post, but I thought I'd just give a little update. My ultrasound showed everything normal. I came off Meloxicam like the professor said and within 3 days I felt a lot better....
Well the professor replied again and she said Ibuprofen would be fine. I'm still unsure so I'm going to go without NSAIDs for as long as I can. I've had a few days in the past 6 weeks where I just...
I thought it was very odd because I can find more online about Ibuprofen causing drug induced hepatitis than I can about Meloxicam. I spoke to my Mother and she said "I'd trust a professor in...
I was taking Tylenol every 4-6 hours when I was feeling my worst, my GP said that it was fine to take it as long as I wasn't exceeding the recommended dose. That's odd that you say Ibuprofen is the...
It's a slow process! We just rung and left a message for my GP to ask if she could please test for autoimmune hepatitis like she said she would if my Hep A/B/C/CMV etc all came back normal. So...
Sorry I just thought I'd mention all the alternative things I've tried. Currently I'm just taking Plaquenil and cutting out everything else (except anti-nauseas). I thought Tylenol/Panadol was hard...
I use to take fish oil, but only for a month or so and stopped about 3 months ago. I took Evening Primrose Oil for a week about 5 weeks ago. I took a little bit of vitamin C for 2-3 days while I had...
I was really hoping it was going to be Hepatitis A, that way I'd be feeling better soon! I haven't been tested for autoimmune hepatitis or the other one. The latest theory is medication induced...
Just an update, blood tests were negative for CMV, hepatitis A/B/C. I'm having an ultrasound tomorrow. My liver function tests were improving and now they're going back up again. So I've got no...
Yup she was really good. She asked me if there were any other things I wanted her to test for! I'm feeling quite a lot better today, so perhaps it was just a viral thing that's going to pass!...
I just got back from my appointment, my doctor was lovely. She's testing for Hep A, B C and CMV as well as CRP, CBC, LFTs. My AST and ALT have come down to the normal level, my GGT (I think that's...
Thank you so much everyone. Mamalama, thanks for researching that, however only one of the doctors on that list appears to still be in New Zealand and he is in Auckland (other end of the country) and...
Thanks Dany, I guess I'm just worried about getting the right balance of being concerned and being over dramatic and I don't want to be either if there's no need to be. My uncle, who is a doctor but...
The gastroentology department says it does liver biopsies and the private hospital has gastroenterologist who say they specialize in liver diseases. You don't seem pushy at all and I sincerely...
I live in New Zealand and from what I can find, gastroenterologists seem to be the ones who look after it here. I'm sure if I get sent to gastroenterology and they can't help me they'll send me where...
I don't think we have a hepatologist where I live, she was talking about a gastroenterologist. She said two blood tests ago that if my LFT had gone up further she'd refer me to a gastroenterologist....
Thanks everyone. I also don't think I mentioned I've lost 10kgs/22lbs in the past 6-8 weeks. It's also extremely painful to sleep on my stomach or left side. I'm seeing a GP tomorrow and I'll just...
I've read being a young female, you're in the most at risk of developing autoimmune hepatitis, so it is possible. But I'm just apprehensive because my mother went in to the doctors all guns blazing...
Thanks Dany. I appreciate your reply. I wondered if autoimmune hepatitis might be possible, but I feel like a hypochondriac mentioning it. I know how rare it is and I just feel like it's probably not...
I'm in my early 20s, female and for the past 5ish months my LFTs have been elevated (or deranged as my GP puts it). If it's relevant, I also have asthma, Celiac Disease (dx 5 years ago, well...
Definitely find a new rheumatologist. He sounds like he wasn't on your side to begin with. That comment about sending you to a psychologist is a pretty big white flag. The good thing is you have a...
I'm glad to hear. It must be nice to have some good news! How long have you been on Plaquenil? I've been on it 7 weeks and I feel no better, only worse. And it's made me extremely sensitive to the...
My blood tests are negative. In the past 12 months I've had two elevated ESRs, now normal. My ANA was weakly positive at 1:80 on 3 occasions, now it's negative. My ENA panel (anti-dsDNA, SSA, SSB,...
I haven't officially diagnosed by my rheumatologist is thinking Lupus and Sjogren's. However all my blood tests are negative. My ANA was weakly positive (1:80) but now it's negative. My ENA...
Thanks I'll look into that....
Thanks couchtater, it says 4 for my city for the next few days. I'm not sure how accurate it'll be because it's an American site and I'm from New Zealand! Wow that's so cool! Halloween isn't really...
Thanks Joy, I use to love summer. I have a feeling this summer is going to suck! How do I check the UV index? I've checked on a few weather websites for my area but I can't see anything. I really...
Thanks. I'll be keeping right out of the sun from now on! Pretty lame because it's nearly summer here!...
I'm hoping someone can help me. I'm not officially diagnosed with Lupus, but my last report from the rheumatologist says "probable Lupus" and "probable Sjogren's Syndrome". I'm just confused! I'm...
I'm only 21 years old, so no osteoarthritis...
Thanks. At the moment between feeling sick, trying to do some exercise and studying at university, I don't have a lot of time/energy to do much else! Thank you =]...
My ophthalmologist said that they can put in temporary plugs that last about 6 months and then if they help he'd put in permanent ones. I decided I'd just stick with the eye drops. I think I either...
Wow good luck! I really hope you get some answers from the bone scan, it was the proof I needed to get some treatment and for them to take me seriously. I had 14 vials of blood taken and they all...
I haven't done a lot of research on enteropathic arthritis because I don't have an inflammatory bowel disease, so I didn't think it was really relevant to me. But I know that it can cause an...
Thanks Lu2011, it sounds like you and I lucked out with the blood tests and stuff! I guess thank goodness for the bone scan! I see you have ulcertative colitis, do they think that you have...
Thanks Chartreux, I don't live in the USA, so no insurance (we have a universal healthcare system). My doctor can order MRIs and other tests, but there has to be a valid reason and he/she needs to be...