Oh man....i just saw the date of your post.....please...please come back.....
Jazzermom!!! I am diagnosed with non-clonal mast cell activation disease which is in the same class of medical disorder as mastocytosis except we unfortunate individuals with nonclonal react more...
the masto specialist has me on ketotifen 1 mg 3x a day, montelukast 10mg 1x a day, cromolyn sodium 3x a day. they are all mast cell stabilizers. i am in the beginning stages of my treatment. i also...
i have mast cell disease and react to EVERY medication so it absolutely can be an allergic reaction. what im getting at is dont guess....contact your doc...
tolnaftate. it can be found at any pharmacy. if you get generic its about $1...
that could be anything in all seriousness. allergic reaction, asthma, reflux, etc. i would contact my doc....
hi...there are multiple things this could be.....crohns...celiac....who knows?? what i can tell you is this...get tested for mastocytosis. i have mast cell disease and i had diarrhea CONSTANTLY...
Its possi le she has adrenal insufficiency with the whole cyclical thing going on. Ask her doc to run adrenal gland tests....
I have nonclonal mast cell activation syndrome. Its up there with mastocytosis. Yes....i have a horrible time with meds. I actually react to the mexs themselves as well as other external triggers. I...
IDIOPATHIC URTICARIA/ANGIOEDEMA....it just happens and it may never happen again. Dont get too worried about it as it happens once to more ppl than you might think and never happens again....
You are not in anqphylactic shock but you are hqving an allergic react and yes it can last minths because the allergen has never left your body. Its still there and your body is trying to fight it....
no problem. Look it up online. In essence its the same thing as mastocytosis except theres no correlation between it and leukemia and your reactions are much more intense and frequent. I had...
Sounds like mast cell disease! I know...i have it. Nonclonal mast cell activation syndrome. Its in the mastocytosis family. Discuss testing witb ur dr. Or better yet...go to a masto dr....
Hi all....i used to be a regular on healingwell a long time ago but had so much going on in my life that i just fell of of the radar. However...in the time ive been gone i finally got diagnosed. I...
razzle, i think i remember you. i used to help out in the hiv forum here some years back. i had some bad times healthwise and had to leave the forums. this is the first time ive been back in years....
Hi razzle. you are right. we have tried every route hoping that it was the WAY the meds were being metabolized to no avail. vaginally was the worst only second to orally. we tried injection and nasal...
Thank you jaye, for the very kind words and chartreux for your prayers. God bless you both for taking the time to to talk to me. i went over to the chat but there was no one there. obviously, thank...
this is probably not the right forum for this. does anyone know of any chat rooms for people who are dying? again, im sorry to burden you all with this....
hi im sorry to burden all of you but i truly need someone to talk to. when i was 30 (now 49) i was diagnosed with a very rare metabolic disorder that has progressed to a point were i cant metablolize...