thanks guys!!! Andy has given himself 'a talking to' and seems in better spirits today, which always lifts my spirits too!! He does notice when i am struggling too, and we usually help each other...
hey guys, a shout out to all the supporters on here, how do you cope with seeing your loved one in constant pain??? Usually i am ok, but today, for some reason, i have been so emotional. Andy has had...
hi guys, been a while since i have posted on here!. Asking on behalf of my hubby who has been suffering with fibro for 17 years!! He has gone through the many ups and downs that all you guys go...
ann if u need a hand with this gimme a shout!!!! guys i'm also a helpliner along with Ann, if any one needs any info and Ann's not around please feel free to ask!!!!! Sandra xx...
hey guys, not been around for a while, but just found out my Father in law has been diagnosed with dementia! though we have suspected for a while that something wasn't right? can any one tell me what...
Hi to any of you in the UK (particuarly Scotland) OUCH (UK) are holding a meeting at the Walton Conference Centre, The Southern General Hospital, 1345 Govan Road, Glasgow on Sunday 5 April from 9.30...
hi tweedle, welcome to Healing Well, but sorry you have to be here at all!!! could you tell us a little more about what happens when yu get these headaches, like where exactly it hurts, what parts of...
hi orthe sorry to hear you are suffering so much, have you seen a neuro that specialises in headache conditions????...
ok can i give you this from a partner's perspective!!! My Hubby suffers from Fibro and Cluster Headaches, it is one of the hardest things to watch the person you love being in so much pain and know...
does the neuro you are seeing specialise in headaches, i would consider this to be really important for a proper diagnosis!!!!!...
totally agree with what has already been said!!! when booking your neuro, try and get one who specialises in headache conditions, really helps to get a confirmed diagnosis of what exactly is going...
sorry you are having a tough time just now have you seen a neuro who specialises in headache conditions????...
tramadol can cause headaches or make them worse!!! Well that's what they did for me!!!!! That's just my opinion though!!! i would never touch them again in my life!! Sandra xx...
thanks Lyn!!!! Sandra xxx...
thanks for sharing your experiences with me, much appreciated. Only heard about it today, so still got a lot of research and deciding whether or not it will be beneficial for Andy!! He can't take...
glad you are doing ok Lyn, i hadn't forgotten about all you guys here, and have often asked Ann UK how you are all doing?? hopefully will be around a lot more again now, so looks like you're stuck...
hi Sherrine, have had a look, and they only accept payment by credit card, we don't have any,(had them before and decided to get rid) will just keep searching!!! thanks...
hi barb and aunt kay, been a while since i've been here, but back now!!!! barb sorry to hear you've been in hospital again, hope you are ok?? Aunt Kay, how are things with you hope to chat with you...
ok, can anyone reccomend a site in the UK that does combination of magnesium and malic acid?? Sandra xxx...
thanks Jeannie, we are looking into that just now!!!!! just thought i would ask about the spb blocks just in case!!!! Sandra xx...
hi guys, haven't posted on here for a while. Any way just wanted to ask if any one knows any thing about spheno palatine ganglion?? Has anyone tried this for their Fibro, and if so, did they have any...
hey honey, been a while since i was last on here!!!! just wondered how you were doing, and how life's been treating you?? things aren't too bad over the pond, hubby still has fibro and Cluster...
hey lyn, your parents share their anniversary with my birthday, i am so honoured to share that day with them!!! thinking of you honey, hugs and kisses sandra xxx...
found this, hope it might help you a bit!!! http://www.mayoclinic.com/health/lewy-body-dementia/DS00795 http://www.helpguide.org/elder/lewy_body_disease.htm will have a look around and see if i can...
lyn sending you some scottish hugs, to help you get through this!!! i know how hard it is, i feel the same way about Dad!!!! it's been 4 years now, but it doesn't make it any easier!!!! you will get...
please look after yourself Lyn, you are no good to your Dad if you end up in hospital yourself!!!!!! sandra xxx...
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hi lyn (((((((((((((((hugs))))))))))))))))))))))) am glad you are finally letting go, it does help!!!! I remember when my dad died, it came to Fathers Day that same year, and i knew i just had to buy...
hi guys, i can only confirm what Ann has already mentioned, though i only know of people with Cluster Headaches that have had it done, i don't have any info about migrainers success rate, but i will...
thanks lyn!! yeah not too bad, had a bit of a cold, and arm is still giving me a few probs, but hey i'll get there!! lol hope you are ok love sandra xxx...
hey lynn am so sorry to hear that it has reached the stage where you need to move your dad in with you!! it is good that you know your way round the system, cause you will need help with your Dad,...
let me know how you get on xxxxxxxxxx...
ok, so now you have brought tears to my eyes lyn!!! lol seriously i know i am so many hundreds of miles away from you, you know you will always have my support, and i will always try and help to...
lyn, my heart goes out to you!!! i know how you feel honey, i too had to watch my dad go down hill fast, though with him it wasnt AD or Dementia, Dad had heart problems and was diabetic, and went...
cheers ann, how have you been?? have been keeping an eye on things every so often, but been busy with work, Andy, trying to stay healthy and all that kind of stuff!!! but am back now lol sandra xxx...
hi mommyto3 sorry you have CH, my hubby is a chronic sufferer, so can empathise with what you are going through, with having to watch hubby all the time!! i hope you get sorted when you see the the...
hi welcome to HW!! where abouts exactly in your head is this pain, and what is it like, can you describe, say as a pulse, or stabbing?? sandra xx...
thanks lyn, i know she has phoned Saneline, and they seem to be giving her some advice and support, i just want to be able to help her, but not staying near her any more, makes it really difficult,...
she certainly does ellie!!! they have talked about a restraining order, but to be honest her mum wouldn't care, hopefully if she has to call the police out all the time, then maybe they can get the...
lyn the only thing she has been told to do is contact the police every time she turns up at her door, and that isn't going about things properly, and not really helping the situation at all!! she has...
there is snowy, but they aren't being much help!! they can't do anything for her, she refuses meds, and refuses to believe there is a problem!! at one point they thought she had dementia, but then...
hey guys, not sure if anyone here can give me any advice, but thought i would try any way!! my sister in law has had awful problems with her mum for many years!!! she seems to have some sort of...
hwy ellie, i do hope that it all works out ok for you and your mum!! i wish i could offer you more advice, but seeing as i am in the uk, am not sure about how you guys go about things over there!!!...
lol good luck ellie, hope she's ok, let us know how things go sandra xxxxxx...
hey cranky, i'm glad you don't have clusters, but sorry you are suffering!!! i don't have them either, my poor hubby is the one who suffers!!! you are right though, they are horrible to watch, but...
hi ellie how are things honey????...
oh ellie poor you!!! i'm at a loss of what to say you, you must be so worried, frustrated, angry, upset, and probably have many more emotions running through your head just now!!! i hope your mum...
please ask your neuro about the possibility of Cluster Headaches, cranky, especially with the ice pick pain you are describing there are other types of headache that can cause this type of pain,...
not bad lynne, need to go for some more physio for my wrist, but back at work and doing ok thanks!!!! are you ok????...
ellie i am so sorry you are going through with this, you definately need to get sorted with professional help for her, you can't possibly deal with this all on your own!!! i really hope you get...