Janet, I never expected to find you here when I made this post for Kitt. I have really missed you! I am sorry you are in pain over your friend. I think I would just straight out ask if you have done...
My dear friend StKitt/Mary called me and asked me to post here that she has had to order a router. It will take about eight days to get it, so she will not be able to post until then. Thanks! Carla...
I am 59 years old and was diagnosed with myoclonic seizures in 2006. I have a definite problem with sunlight which I have never thought to mention to my neurologist. If I look up at a very tall tree...
Kitt called me and asked me to let you know that her internet has been down since yesterday afternoon due to storms in her area. I am sure she is lost without her computer. She will post as soon as...
Exhale, I am so sorry to hear that you are having so much trouble with your asthma. It does sound like you went down the same path I did. Does your doctor have you on Xolair? It has helped me a lot....
Tina, I am not familiar with Churg Strauss Syndrome or Turbutaline, but I will look them up. What do you use in your nebulizer? I use X openex as my inhaler and in my nebulizer. I can't use...
I just wanted to check back in with you guys and let you know that I am six months seizure free!!!! It has taken me three years to get here, but I made it. Is Darren still around? I noticed that...
I stay out of the heat and humidity as much as I can because I have severe asthma. But, it is really bothering my fibro. I have had a lot of headaches, from what I am reading, maybe they are fibro...
A friend of mine who does not have fibro mentioned to me today that two of her friends were using Vibe for fibro. They felt it was helping them a great deal. I found it on-line and it is $59 a...
I just wanted to say hello. I hope everyone is doing well. Darren, if anyone needs special prayers, would you please email me? I haven't had any more seizures since August 17th. I am trying to take...
Does anyone else here have fibro and epilepsy? If so, would you mind sharing some information with me? I had seven seizures back to back last night, more than I have ever had before. I had been on...
I had seven seizures last night, back to back. I have never had that many at once. It was after I had been on the computer for about two hours. I am going to avoid the computer until I can talk to my...
Monte, If you are going for the 3-4 day EEG, it usually takes that long to get in. Most hospitals only have a certain amount of rooms with that type of equipment. So, don't think it's about you. That...
I also have severe asthma and never smoked. I am sorry to hear that you also have COPD and have to use oxygen. I take an injection of Xolair monthly which does keep me out of the hospital. It is only...
Prednisone can have some evil side effects, but for those of us with serious asthma, it can sometimes mean the difference between life or death. I have put on so much weight the past six years since...
Maybe we will all get seizure free at the same time some day soon and stay that way forever. That was a nice dream. I'm awake now. Hugs to all! Carla...
Hi Angeliz, The worst of my pain is in my hips, lower back and left shoulder. I have many other spots such as my arms, back of my head, knees, ankles, elbows,chest, etc. I can't even remember some of...
Nancy, You are certainly in my prayers. I was just diagnosed about four months ago and I'm a slow learner for sure. Please try to take good care of yourself so you don't have to have surgery. Right...
Teresa, At least now you know where you stand with this guy, you won't be waiting and hoping. It is so good to hear from you. Please try not to let that visit with him send you backward. If it does,...
Do you have drainage that could be causing it? Is it real dry in your house? I'm just trying to think of a couple things. Have you been back to see your doctor? Good luck! Carla...
I am allergic to cats and dogs. I have two Himalayans, they are brothers. Their names are Neiman and Saks. I never thought I would own a cat, ever in my life, much less two. They are 12 now. When my...
Well HW, it sounds as if you had better follow your doctor's orders. It sounds like he knows where to find you. /community/emoticons/smile.gif You are in my prayers, Carla...
Randy, Thanks for sharing that with us. When asked a question, a lot of times I close my eyes real tight and have to think about it because I know the answer is some where in my head, I just have to...
I didn't know they still made Cabbage Patch Dolls. I'll have to look for some for my granddaughters. The good stuff - I made it to water aerobics this afternoon! I may not be able to completely...
You said you had the esophageal probe. Are you talking about the ph probe where they put the wire up your nose, down your throat and into the esophagus and you keep it in for 24 hours? If so, this...
Mike, I didn't know about the Twinject, glad to learn about it. It sounds to me like you had better talk to your doctor about prescribing it for you. In my opinion, most likely if you have a reaction...
I'm sure he thinks he is helping and you are probably not going to change him. I live alone and when I was first diagnosed two years ago, a lot of people thought I should have someone stay with me....
It does help to have our little support team. This may sound silly, but for me, having the seizures aren't all that bad, it's the consequences. I am 57 years old and I feel like a child who has...
Aurora, I am sorry to hear that you are going to have to wait that long for that appointment. Well, you surely don't need to be out in the heat and humidity. Is there any thing indoors you enjoy...
I would like to welcome you to HealingWell. Believe me, you have found a great site. I was just diagnosed about two years ago myself and as new and different things would happen to me, I don't know...
Well, I had my driving privileges back for two whole weeks, then I had a seizure last Monday and another one last Tuesday. My neurologist increased my Keppra. All in all, I am having a good day. Hugs...
Thanks, Joan. That's what I am going to try to do. I start water aerobics for the fibro tomorrow. I appreciate you looking out for me. Hugs! Carla...
Hey Aurora, I don't think we have crossed paths in a long time. Ditto on everything you said. Tom, I hope you are feeling better real soon. Hugs to all! Carla...
I would like to welcome the new members I see who have joined while I have been trying to recover from a couple of different illnesses. I'm not all the way there yet, but working real hard on it....
Thanks to all of you for keeping the forum going. You are a wonderful group and you all are doing a great job. It looks like we have some new people. That's great. I may be in and out the next few...
Welcome back, Groovey! I have heard of honey made in such 'n such areas that is supposed to help allergies, but never that particular type. If anyone knows anything about this, please share it with...
Mike, With your reaction being that serious, have you asked about having an epi pen prescribed? I know it's a little easier for a female to carry one in a purse, but it sounds like you might need...
Momikens, Hope you are feeling better soon. GERD is a bear. I'm glad to hear that is getting better for you. Take care! Carla...
I have to agree with Momikins, if you test positive and have the symptoms, I would give them a try. They do work for a lot of people. Allergy shots just didn't help me. That is my unprofessional...
Welcome to HealingWell! It sounds like you are definitely allergic to something. I would definitely avoid those things that you mentioned that seem to be triggers. I can imagine you are afraid to eat...
Critter, I would like to also welcome you to HealingWell. I don't think I have any answers for you. Astelin has been around for quite awhile, I do know that. Have you asked your doctor if he/she...
I would like to welcome both of you to HealingWell. Fortunately, this is not an illness I have ever had to deal with. Possibly, if you look back through some of the old posts, you might find...
Hey Danni, Just checking in to see how your summer is going. I hope you are out of school by now and hanging out with your friends. Big Hugs! Carla...
Lyn, Darren has said many times that there are no stupid questions. I was certainly glad to hear that when I first came on board because I felt like a fish out of water. Darren knows so much about...
Joe, Remember I am not a medical professional, but it could be that your doctor might have to put you on a round of Prednisone while switching you over to another inhaler, that you will use wisely,...
Welcome to HealingWell! It sounds like she was allergy tested, right? You mentioned esophagus problems. If she does have acid reflux, it could be causing some of her asthma symptoms. She would need...
Welcome to HealingWell Abbie. Thanks for passing along that information. Is it by prescription or OTC? Take care, Carla...
Julia, It will soon be 25 years since the death of my little brother. He was 19 and died in an auto accident. A few days ago I was actually able to laugh about him with one of my friends from high...
Joey, Could you tell me in what way you think you have abused the medication? Are you seeing a doctor now? If this is something you don't want to post, you can email me. Just click on my name and it...
Would it be possible for you to have someone else to clean your house and you leave the house or sit outside while they clean? I can not clean my house. My allergist even gives me a statement for the...