I agree with Girlie "You got this" I went on Saturday for my 2nd shot (moderna). I was super nervous again. I replied to a earlier post that I when I got my first shot I got some tingling in my left...
Yes, I did the shot late in the day on a Saturday and by Monday back to baseline. I will say the anxiety I got beforehand was pretty bad and that alone can bring symptoms out in me. So the relief...
I received my first dose of Moderna last Saturday. I was a nervous wreck and was very close to canceling the appointment. I go back for my second in July. I tested CDC positive for Lyme in 2019 and...
That is excellent news! Great that some of these doctors at least will talk about Lyme....
So happy to see this! Glad you are having some relief with the fevers and some good days!...
Wondering if anyone can offer any advice on malarone. I was recently diagnosed IGM with Lyme and Babesia and currently on Doxy and my doctor wants to add in malarone for the babesia (two tablets a...
Yes, I have the exact same issue. When all of my symptoms started I lost weight and got down to 105. I can now maintain 110-112 but all the weight is in my stomach, goes no where else in my body....
So sorry, I was so hoping the doctor could help. Our healthcare system is a mess!...
The test was not recommended by my LLND. Something I am considering doing on my own. Especially interested in the MTHFR and Folate genes. I have seen other options such as using Max Gen Labs and Dr...
Anyone have feedback on using Tree or Life, Dr Bob Miller, for genetic counseling and MTHFR issues? Thinking of using their genetic test vs 23 and me and having a phone consult to go over genetics...
Yes have this also, hands and feet bony and veiny now. Temples also sunken. I keep having to buy smaller tops cause of loss of fat/collagen in arms and shoulders. I was taking the Great Lakes...
Would it be ok if I emailed? I do keep coming back to your posts cause I have some similar symptoms....
Well for me, I can feel things happen at night when I sleep, like there is in inbalance in my body. My stomach is gurgling at night as well. Before I wake I can feel anxiety for some reason. I wake...
I believe so also, I am having that. I wake with anxiety and I think it makes my stomach nervous. I had a good two months with no anxiety and now it has come back. My stomach is reacting to...
Hi Running wild, would it be ok if I emailed you. I have many of your symptoms that are all bizarre and just wanted to touch base if possible. Thanks!...
Ever since I started getting symptoms 2 years ago I have also had a ton of mouth issues. Gums sore and thinning. I don't have any metal fillings and did not have braces. My teeth have shifted alot in...
I was diagnosed in April with lyme, did igenix but I had my suspicions before the actual result. I don’t have a lot of confidence in my llnd she seems to just throw things at me with no real rhyme or...
Running wild - what would you say was the most effective treatment you did to hold things at bay. I have had the collagen loss for the last year pretty bad, it is everywhere not just hands, face and...
I don’t get the burning skin. But when I wake in the morning my stomach will be red either all over or one side. It typically goes away after 30-40 minutes. I used to think it was how I was laying...
How is your sodium levels? There is a thing called salt wasting that can cause alot of urination....
Anyone have any experience with low stomach acid. Looking at taking Betaine HCL with pepsin to help with this. I tried the baking soda/water test, add 1/4 tsp baking soda to 8 oz of water in the...
Thanks Gerdy When I was on the Jernigan site to get the Neuro Antitox and Borrelogen they are out of stock of the Molybdenum. Do you take another brand by chance? I wanted to start taking the Neuro...
I am going to start taking some the Neuro Antitox and Borrelogen that is the in the Jernigan protocol. I have also read about taking Molybdenum with it. Do you need to take it with the Neuro Antitox?...
Running Wild Just wondering what kind of collagen product you used? I have researched a bit and interested in possibly doing something cause I can't stand how much this has affected my looks....
Yes, I have this also and is horrible. Basically thinning skin everywhere but very evident on my hands and feet. I do take the Great Lakes Collagen but have not noticed much of a difference. I...
I was also diagnosed with Gilberts/high biliruben back in 2016 from some bloodwork I had done. I was going to try to treat my Lyme with herbals and not do antibiotics. But now I am wondering if abx...
I finally got my Igenex test results back and waiting to see Lyme literate ND later this month. My results are IFA serum >80 positive IGM - negative 31 + 41 Ind 83-93 Ind IGG - positive 31 Ind 34 +...
Have you tried acupuncture? I was recently diagnosed with Lyme, however a number of years ago when I was trying to conceive I had unexplained infertility. I went years not being able to conceive and...
Mine was 18,000. I agree all of these tests cannot diagnose anything specific. As my doctor explained an indication of inflammation which can be mold or lyme. There is nothing in our house with mold...
Yes normal c4a. They have not checked any of the other functions that go along with the biotoxin CIRS protocol. I am retesting the TGF-b1 again. I don't think the person I am seeing really knows much...
I did not have any other mold tests done. Just C4 which was in normal range....
Anyone get a TGFB-1 test done and come back very high. This is Transforming growth factor beta 1 blood test. I am not even sure why they ran it. I am having it retested as there can be sensitivity in...
Hi Running Wild, I just wanted to touch base and see if you had any luck with the fat/collagen loss you have described. I am having it bad and it just keeps on going all over my body. I can't find...
I have done morning rising temperature and it averages about 97.33. Low, but has been that way for many years. I used to temp myself when trying to conceive. I have just been noticing low temps after...
Is it common to have low body temperature after activity? I have been temping myself and after resting my temp is in the 98.2 - 98.4 range. The strange thing is if I do any activity (walking around...
I had an appointment with a ND in my area who is a Lyme Practitioner. She feels with my symptoms it could be Lyme but wants to hold on testing for it. We are also looking into MTHFR issues and will...
I am in SE WI. Just went to SH in Waukesha. They say they now accept Blue Cross Blue Shield Anthem. They are submitting everything through my insurance. However, when I look them up in my provider...
My ft3 ratio range was 15.3 and they say should be 20 or higher. Everything I read should supplement t3 only. I don’t have a doctor who will do this....
That is why I am leery of taking amour since it does have t4 in it. Any ideas how to raise low body temperature. My hands and feet get icy. Plus I do have raised bilirubin diagnosed with Gilbert’s...
Sorry I think it is 15.3 ratio...
My ratio is 1.5 on stop the thyroid madness site. I have low body temp also....
Free T4 = 1.1 ng/dl range (.8-1.5 ng.dl) T3 Free = 2.9 pg/ml range (2.2 - 4.0 pg/ml) TSH = .691 range (.350 - 5.0 mc units) Reverse T3 = 18.9 - no range given Thyroglobulin antibodies = .9 iu/ml...
I am currently getting tested for thyroid, hormones and lyme. My thyroid results are Free T4 = 1.1 ng/dl T3 Free = 2.9 pg/ml TSH = .691 Reverse T3 = 18.9 Thyroglobulin antibodies = .9 iu/ml (normal)...
I am new to healing well also and actually joined due to suspecting Lyme disease. I read this topic also as my mother has primary progressive aphasia which affects her speech and she is now non...
I am in the process of testing with Igenex. I did have a Epstein Barr Virus test completed and the results are: EBV VCA - IGG AB 8.0 (high) EBV VCA - IGM AB .2 (normal) I have never had mono so not...
Yes I would be interested. If you could email that would be great....
Can anyone recommend a LLMD in the southeastern WI area? I had one referred to me through ilads but the doctor is no longer taking new patients. Thanks...
CatLady18 - I am scheduled to have the WB test, it probably is not Igenex since it is through my Primary Care. I have to ask her which test it is. I am looking into a LLMD doctor in WI. I am still...
CatLady18 I am going to have standard test through my primary care. I am looking into finding a Lyme doctor where I live. All other testing for thyroid and hormones have been negative. I thought I...
Hi Catlady18 I am new to the site as well. Exploring Lyme as a possibility to my strange symptoms. Having Western Blot test next week. Have done a ton of blood work and everything negative except for...