Is anyone on this yet? Please kindly give your experience. I'm thinking of asking my mom's new doc for this. Thank you....
Tried Rytary one more time last week. Not happening. Back to crushing Stalevo. For those of you with the patience to work through it I applaud you!...
If it was possible I would sell an organ to get it for her....
Not sure if you know this but Mirapex name brand has stopped production as of January of this year. I just found out yesterday after the supplier to my pharmacy ran out and said none will be coming....
Wow I can't believe I posted all this from so long ago. Currently my mom has full bottom dentures and partials on top that are holding on for dear life. The bottom dentures do not fit so they fall...
I had a childhood friend that was hooked on Norco. She took it for pain and it worked and acted like a stimulate. She was cleaning her house at 2am because she felt so good. Nothing lasts forever so...
Leather looks more upscale. They clean up better and lasts longer but costs more unless you get fake leather. Fabric is warmer to the body and you do not stick to it in the summer. Elderly prefers...
Hi Susie, My mom takes time release Stalevo and I have been crushing it for 10 years now. She has a fear of swallowing pills whole so that's the only way I can give it to her. I heard hospitals and...
The doctor said his other patients do it and it works just the same for them. The pharmacist goes by what the manufacturer says which is don't do it. I suppose it depends on the patient's individual...
Had anyone tried cutting the patch in half or quarters? For example would a 2mg become 1mg if it's cut in half or would it stay at 2mg but lasts just 12 hours instead of 24 hours. My mom is running...
My mom is not cognitive enough to understand what is asked of her. It was suggested that I push her lower jaw in gently to force it shut so the top and bottom teeth will meet. I think it still...
Happy 2018 folks. Mom went to a digital denture maker last month. We are now at the denture stage because her teeth continues to fall out. Does anyone know how to get someone to cooperate for a bite...
Wouldn't that be something if it were true? People who get their cavities taken out suddenly start to think clear? I wish! No, my mom's always had bad teeth. The latest is that she will get 2 bottom...
My mom was on versed and fentanyl for her dental surgery and those were a powerful combination. Unless someone is getting operated on from the inside I really don't see why something so strong would...
oh.. then I guess I'm still confused then. I always assumed it means the same thing....
Thanks. What drugs are considered sedation?...
Hey guys, I'm baaaack... The great husband and wife team that worked on my mom have decided that they no longer want to treat my mom due to liability reasons. So in other words they have decided that...
Hi Don99, I'm so flattered that I'm your first post. :-) I am giving my mom Rytary this coming Saturday so I can watch her over the weekend and see how she does on it. I work full time on the week...
Has anyone tried Rytary by now? My mom's doctor gave a 30 day prescription on the lowest dose to try 3 times a day. I will start this coming weekend on my mom so I can monitor how she does. I would...
Hi Jeffgamer, My mom has lost about 3 teeth since the surgery 2 years ago so we kept getting her partials redone and that includes parts breaking off and not fitting right as her remaining teeth are...
Does anyone here feel high after taking your meds? My mom gets this way everyday after each of her doses. I tried decreasing the amounts but then she doesn't have enough and if I give less but more...
I hope not. My mom stopped talking in complete sentences about 5 years ago but other than that she's pretty healthy but has PD with dementia. She eats she walks with assistance she laughs and smiles....
Doctors hate it when you go online and play doctor yourself. What benefit do you get from Mirapex? My mom takes Stalevo with Mirapex as a combo. Maybe you can suggest that to your doc? Add a...
When a drug is new they have to charge an arm and a leg to hopefully get back what was spent. You are right though if people can't afford it then what's the point? My mom's doctor said it's too new...
So many people have horror stories from other forums I join but it really is a good drug for PD. My mom gets too sleepy from it which to me is a bad point and it is next to impossible to stop it even...
It's here. Or today is the day anyways. I don't now when it will actually be available to the masses. I hope to get feedback from people who will give it a try....
There is no doubt about it. Your life IS on hold. My mom has PD and dementia and it's been 24/7 for the past 9 years. The PD wasn't so bad and she's had that for over 25 years but once the mind went...
Hello everyone, Since nothing much happens on this forum I thought I would wake you all up. Here's hoping this will work so much better than what is available now and make everyone with PD function...
Ed, Please tell me how you take .25 Stalevo. Thanks!...
We try our best to do what we can to keep them looking and feeling the same as before....
You are lucky to have your wife as a resource. You are in good hands....
Thanks for writing back. How do you take .25 of a Stalevo 200? Sounds like your tremors are getting worse with time? Have you wondered that maybe it's because you take so many that you shake more? My...
Hi Yekkimo, I was going over my notes and printout from this forum and saw that you said you would take half a Stalevo when needed. I have often wanted to try that for my mom but was afraid since the...
Yes my mom drinks mostly out of a straw but she will slurp very hard and choke from that. Drinking from a straw prevents food from being washed away from her teeth so I try to have her drink from a...
Hi dragonfly711, My mom has stopped swallowing her pills for the past 4+ years now. I crush everything including Stalevo which I know I am not suppose to but I do. When she was on too high a dose of...
Sorry I didn't know I had this response. So....Parcopa and Sinemet worked the same way for my mom meaning.... zzzzzzz She slept and slept and acted drugged out when I gave her even half a pill at...
Thanks but no response is still discouraging. I wish more people would participate and start a conversation....
Does anyone read or participate in this forum? I keep talking to myself over and over. It's not the best feeling in the world....
Yup that was a year ago and my mom got partials instead. Due to the missing teeth her face is sunked in and she has that sucking lemon all the time look. Her partials is a part-time job for me now. I...
Hi Lizzy, Her doctor said its her meds that are doing this to her. She takes Mirapex and Stalevo and Namenda....
My mom ate a jar worth and nothing happened....
Well since Ritalin, Provigil, and Amantadine went bust I am now going to try good old fashion Starbuck blonde blend coffee for my mom. I don't know if it will make her stay awake. She's been drinking...
I had some major stress earlier in the month and my xanax was useless to me. If you can control how you react to your drama then maybe that will help more. Stress never leaves us but how we handle it...
I think this affects all agonists and not just Mirapex. My mom was addicted to slot machines until she got dementia. Once her mind went so did the urge to gamble. I don't even know what's worse. I...
You have so much to deal with but you seem very strong. Life really sucks. I wish we can all live in a clean germ free bubble. That would be my ideal world. I'm sure I don't need to tell you but...
Too sad to think about. I cannot imagine working in hospice. If you have stage 4 lung cancer then their is still hope for you. I know 2 people who survived it but my cousin didn't. 2 out of 3 ain't...
Oh... on everything. I don't get how you die from dementia? Everyone ultimately dies from heart failure but if your mom had a strong heart that I really don't get it. But then at 96 maybe her...
What did your mom do that the caregiver couldn't handle and you had to hand her to a nurse? May I ask what was the cause of her death? Do you worry that you will have the same condition being that...
So terrible. It's bad enough your grandma had to go to the home for her protection but to be neglected by them in the end is inexcusable. She deserved so much better. Sorry that your family had to do...
You know those listerine mouthwash strips that melt in your mouth the instant it touches your saliva? How about that? No one would ever need to swallow another darn pill again. You take them out of...