Lots of people with digestive disorders are thin, the easiest tactic is to not eat, less food less problems. But there are drawbacks to that too. I eat at home mostly where I know if there's an...
I think one of the most frustrating things is your not sure if it's just air or you have to go, it feels the same. Can't count the many times I found a washroom and it was nothing, the uncertainty...
Have had many colonoscopies and none of that stuff is easy to get through your system, I just taper my food intake a few days before. Less in, less out. I never drink the full amount, so far they...
Hi, The surgery was intended to remove adheasons, it was like my food would get to a certain point and just sit there until it fought its way through. After the surgery that painful feeling is...
Hi I live in Illinois and the surgeon used the latest technology (robotic assisted) for accuracy it was done laparoscopic so the healing was a breeze. The surgery took about 3 hours for my particular...
After years of suffering with abdominal pain, and after being told it was this or it was that I found a surgeon who knew what it really was. I had surgery to remove scar tissue that was restricting...
Hi, just wanted to post an update it's been just over 3 weeks. Still some pain at the surgical sites, but overall pretty good. I think what I'm feeling is the effects of the many medications I'm...
Hi, I had the same surgeries, but more. Had the pain like you describe too, just had surgery and a lot of adheasons wrapping around my intestines were removed. I now eat and everything seems to be...
Hi, I just went through the same situation, I finally found a surgeon willing to remove the scar tissue. It's been 9 days so far and I have been eating again without the feeling like things are...
I have suffered for many years with lower abdominal pain and been through the medical system with no help at all. I was told it's a GI problem by 4 surgeons and at the same time I'm told it's...
Hi, I don't post a lot, but read a lot, I get the real story not a bunch of bs. So for me I hope everyone stays. Plus you can say just about everything and not feel judged, like taking about poop :)...
Hi, the Crohn's has been in the colon only, I did have 1/3 removed and 3 other major surgeries in the abdomen unrelated to the Crohn's. I did have a temporary colostomy for 3 months and did pretty...
Greetings, I was also 25 when Crohn's was diagnosed, it's 30 years later and I have seen lots of new therapies over the years, a lot more that what was available back then. Not gonna lie it's not...
Greetings, I have had Crohn's disease for over 30 years and have had multiple surgeries. I suffer daily just getting anything through my messed up system, seems like I can't get anyone to diagnose...
I have the same thing happening everyday, I wake up and I feel horrible, And it takes awhile till things settle down. I try to do something that occupies my time, anything that I can focus on to keep...
I get the same symptoms if I drink anything in moderate quantities, I think there might be a partial obstruction and the liquids push everything through to fast and that's where the pain comes from....
Thanks for the replies, I am going to see what my GI has to suggest too....
Hi, I have been using Humira for 6+ years and it does help with the inflammation pretty good, but it seems to not last as long as before. I am doing injections weekly currently, but it only lasts...
Greetings, after reading your post it's clear that you are a loving, caring and rational individual. And you should realize some people are just lazy and care only about themselves, they can't and...
Waited a month to see him, as I was really sick, he said there was nothing he could do? I was very disappointed, the least he could have done was suggest a support group or something. Oh I did get...
I was in the same boat, what I did was apply for charity care for each hospital and Doctor bill. They will give you a percentage off the bill, almost everyone did give me a discount, you just have to...
I have never served in the military, but can understand your frustration. I always thought these supposed people we defend should cough up some compensation for the protection provided. The US is...
I think we all chase that elusive remedy to our discomforts, I don't know what it's like to just not feel some kind of pain somewhere. And yea we who suffer get an addition slap in the face as the...
Hi, I just went down this road a few weeks ago, the company J & J was of no help whatsoever, was denied any assistance, I even submitted an appeal, I was told NO, and do I need it spelled out, they...
Had a colonoscopy in 2013, still paying bills for that, makes you wonder. Could have spent the cash on a trip or something and felt better. They even said in the findings that they viewed my entire...
In the same boat as you, I just have no idea what to eat, almost everything brings discomfort somewhere. Talking to Dr. about getting nutrition via IV till something helps. Not sure how that will be,...
Thanks for that information, I was traveling last year to the Philippines, and my big cooler to bring my Humira with went through security without any questions, I was surprised, but relieved that it...
Not to make lite of your situation, but it's great that this forum allows us to openly without any judgement talk about these topics,we all pee/poo, hope you get better. :)...
That's the exact medication I found out about yesterday, already started the paperwork with my Dr. Today, from what I was told by the company, they assign someone to work with you to explore all...
I have had some success with Humira, and the company has been providing the medication at no cost, but after many years of use Its effects (good) are diminishing, I did write to the manufacturer of...
Hi, Does anyone know how much I can expect to pay out of pocket for a Remicaid infusion if I have Medicare? I have applied for assistance with the manufacturer, but was denied, I have been using...
Hi, This question does make you wonder, how much $ the drug companies rake in. There's all these great new medications, but They cost so much, the people who need them can't afford them, even if you...
Thanks for your support, I have an appointment 1/20/15 with my Pm doctor, he assisted me to get off all the pain meds before to truly know how I felt with my pain unmasked. So when I brought this to...
Greetings I am wondering if anyone who has had multiple abdominal surgeries that could offer any suggestions that might help, let me explain. Have had 4 major abdominal surgeries and have always...
Hi, Just get a bottled water and mixed it, did this for a while, worked well for me. Just mark the top with a smiley so you know what's in there. Hope you feel better...
Hi, I'm also in my early 20's when DX with Crohn's, 1985. I filed for SSD was denied, then found a lawyer who helped to get approved, cost me nothing, but took 2 years from when I first applied....
Hi, You seem so alone is there someone who can be your advocate until your able ? I'm Crohn's for many years and when I am really sick I can't manage my own recovery. I just changed Docs too I found...
Thanks for the replies, I did plan stopping the opiates with Suboxone, well that didn't go so good. Took 'one' pill, ended up in ER. Never went back from there. Just have to let my body & Mind reset....
Hi, Yea seems so messed up there's all these great new medical advances and drugs but who can afford them. if you have an illness and are not wealthy you have to make your medical choices based on $...
Greetings, Haven't posted in a while, so here goes. I have been on Morphine 120mg & Methadone 100mg daily for the past few years, but have always been on some form of opiates starting back in 2001. I...
Thanks for the post, very informative . I will be seeing my doc soon to see what will be next....
Greetings, I had one of those lovely colonoscopies done last week and I saw the notes given to me upon my discharge. I saw that there was Colitis detected, can someone have Crohn's and Colitis at the...
Hi, I am using some medications for crohn's disease that lower my immune systems ability to fight infections so I am at risk. So for me being more pro-active in sanitizing everything I can with...
Hi, I understand your situation somewhat as I also have this love/hate relationship with food and eating. It's like this, anything I put in my mouth can not have any fiber, to hot ,to cold, not...
Hi, I have been taking pain meds for a few years, and I have had my share of side effects from them. I recently changed from Morphine to Methadone as my primary pain medication. The outcome of the...
Hi, I was in a situation like yourself, and yes it was difficult. I had to hire an attorney and they did get some of my settlement, but I was successful in the long run. I am not sure where you live...
Hello, The idea of telling someone about your BM is quite hard to do on it's own, but it's nice that here at (HW) we can. Having said that I will share too. about 4 years ago I was having lots of...
Hello, I had to have a temporary colostomy for about 3 months and there were alot of things that I had to get used to. Overall it was not bad if it were a life or death situation, and there were not...
Hi, I have also had parts of my colon and stomach reworked/removed so I understand what your going through. I am currently taking pain medications and one good side effects is that they slow down my...
Hi, I just started methadone as my treatment for pain, I was on morphine er & ir . So far I have had little or no withdrawl symptoms, I am on a two week trial to see if the methadone can fully...