I got my first one on 7/29/21. I had horrendous side effects. Arm pain to the extreme, worse than any other vaccine, including Covid vaccine. And severe joint pain for days too. It was all so bad,...
Dang Randy if its not one thing its another with you, as my Mom use to say. Seems you rarely get a break. You were always one of the people I felt got the worst of the worse cases of Crohns. I am in...
IDES how are you? I’ve thought of you often. And I remember all you guys!...
Hi Habs and 73Monte! Just was casually looking at saved sites on my IPhone and saw Healingwell, so thought I’d take a look. Kind of weird to see this post too. Kind of like I was supposed to see it....
Hi Randy, You are one of the few that I would ever respond too, as I occasionally still lurk. The forum has changed a lot. My screen name was Nanners and I was diagnosed in 1975, so I am familiar to...
I hope you get it! But another thought is to apply for Social Security Disability. And if your state has it, apply for short term disability with them. I live in Calif and I can get that for one...
Hi Missy, I just wanted to let you know something similar happened to me in January. I had worked for the company for 22 years. They told me it was a reduction in force, but in reality I know it was...
Like Clonehead I had had the disease for 22 years before I had to have my first surgery. Good luck!...
Heating pads are my best friends on those days! Can you take something like Maalox or Mylanta? Those might ease it some too. Hugs!...
MikeB is another member here who has had Crohns for a very longtime who has never had to have surgery. He is maintained only on 6mp and has been on that for over 10 years. So be sure to stay on your...
Just wanted to say a quick hi to Spooky! Longtime no see. Glad to hear you are doing so well. Hugs!...
I agree with Kazbern. Stress is definetly not our friend and can cause some very flare like symptoms. Anxiety does that to me too. I take Xanax for those anxious times now, and it really helps. Hugs!...
Everyone develops some scar tissue at the reconnection site. Sometimes you get inflammation in there that heals, and what does it do? It creates more scar tissue. I suggest seeing your doc and...
JavaJay have you ever tried doing a low residue diet? Its less restrictive as the others, but is a diet recommended for those flaring. I have followed this diet for years and modified it here and...
I wish they had a like button on here Randy:)...
Yeah glad to hear things are moving. Phew as C2 says! Hugs!...
I agree with grayeyedblonde! Talk to your GI about a possible bacterial overgrowth. I have had it a few times. I had d that was very sticky, everytime I ate I would get really bloated and gassy,...
I am so so sorry to hear this news Randy. Praying for a successful stretch of your stricture. Big hugs my friend!...
NCOT just wanted to send you some big hugs! Steroids the meds we love to hate. I so agree with calling your GP for something like Xanax, Klonopin or Valium. I take Xanax and it really helps me during...
Sherrine I am so so sorry to hear of your loss. Please know that I have you in my prayers and may God's grace be with you in the coming days as you grieve the loss of your precious friend and dog....
Sorry to hear you are still in the hospital. I was in for a longtime too after my emergency resection too. I had troubles walking and then I got an infection in my incision and had to have it...
Are your stools really sticky? One thing comes to mind is a possible bacterial overgrowth. I have had that and I had alot of discomfort in my guts, sticky stools, bloating and gassy. It became even...
Honestly not much you can do for adhesions. Surgeries to repair them only create more adhesions. I do know that I have alot of adhesions and I have found that massaging them seems to help some. But...
I myself experienced an emergency resection. Not fun for sure. Mine was my first resection too! Try to walk as much as you can, it will help to wake your bowels back up. Also, I agree 100% with...
Hi Dave, May I ask if all is okay with you? The reason I ask is in this post you have come across not like the Dave I have known and loved. I wasn't going to post on this post, but I felt I had to,...
Thanks everyone for sharing their experiences. Anyone else with something to share is greatly appreciated. I have an attorney, as all this paperwork seems too daunting to me. I get all stressed out...
Anyone here on disability for their Fibro? Can you share your experience? The reason I ask is because I was laid off after 22 years on the job lastweek. I also suffer with Crohns Disease for 36 years...
Good luck Stephanie!! Hope the Remicade does the trick for you, you sure need a break. Hugs!...
Thanks everyone for your kind words. And thank you Stkitt, I know you have been where I am now., Hugs!...
Congratulations Stripey!! That is wonderful news for you. I am in the middle of applying for permanent disability myself, hoping I am as lucky as you. Big hugs!...
Thank you all so much. I really appreciate it. I know that as Tink says when one door closes another opens, something good will happen. Its like things were meant to be this way I think, as things...
Exit 4 thank you so much. I have decided to go thru an attorney. I think it is the best from everything I am hearing. I am 54 years old and really who is going to hire someone like me who has had...
I think instead of talking to HR, I might see a disability attorney. HR works for the company and I don't want them in on anything if you know what I mean. Hugs!...
Ok yesterday I was terminated from my job after nearly 22 years with them. Most of my benefits continue until January 31st, but my shortterm/longterm disability continues until Jan 20th. I have my...
I've used it for my arthritis pain, and it has helped some....
I have to agree with firecracker1 here, don't try to solve any Crohns related problems she has, just be there and listen and support as much as you can. If she is feeling bad, and too tired to fix...
One of the mods here IDES has it. Hopefully she will see your post and respond soon. Hugs!...
Sorta sounds like you had a stomach bug. With food poisoning you get sick pretty quick and better in no time. When my healthy husband gets a stomach bug he is down about 2 days, when a I get it, it...
Roseacea??? Just a thought!...
I understand about not wanting to take more pills, we do take ALOT!! :) I tried to do it like you are, but eventually I had to get on them for about a year or so. I had the same situation of my...
Just wanted to offer you some gentle hugs! I have been where you are and its not fun. I know when I get stressed for long periods of time I flare pretty badly too. Had it happen this past summer....
Most common probiotics used are Culterelle, and Align to name a few. I use Primadolphilus Fortify by Natures Way and have good luck with it. But...I am not on biologics either. You might ask Dave...
I have had two open resections, due to bowel obstructions not fistulas. If you are able to have it laproscopically your recovery will be a little easier. There is pain either way afterwards, but they...
Sounds like GERD or acid reflux to me. I am sure you are already being careful, but make sure you do not eat about 3 hours before you go to bed, that can cause the the phlemy stuff. Hope your tests...
When you say pain, can you describe it a little more? The reason I ask is that you could also possibly have a bacterial overgrowth. When I have had that anytime I would eat anthing I would get really...
They have patency capsules you can use first to see if the pill cam would pass successfully or not. If it does, then you could have the pill cam no problem. If not, then you know you can't use the...
Hi Isergodur, Have no suggestions about the breastfeeding as I knew Stef17 would be a great person to advise you. But just wanted to wish you the biggest congrats on your twins. How exciting for you!...
Yeah my docs have been pushing me that way too. I am trying to get thru the next two years and that will be it. Good luck to you!...
I think I would stay with what you can tolerate. Eating more just to try to gain weight, is just going to cause you more pain. I think you need to get back in touch with your doc, but seeing you have...
Sounds like you have a wonderful new doc. With my last flare I had much the same issues with bp and low then high blood pressure. I was pretty dang sick and had to go thru tons of additional testing,...