Lyme friendly PCPs are so hard to find. Mine is not a denier, and is deferential to my LLMD, and for that alone I am grateful. My Mom's PCP, in another part of the state, is also supportive. I see an...
Lisa, if you would like to send me an e-mail, I'm happy to provide the names of a few of the LLMDs I've seen and share my experience with them....
dbwilco, do you see Dr. P? I was put on a waitlist to see him in 2016 and have an apt. in May. Would you mind if I e-mailed you to ask about your experience with him? In the meantime, I began working...
Hi Lapis, I have done both IV ozone and rectal insufflations. A friend of mine, who is an acupuncturist, loaned me his ozone machine and taught me how to do the insufflations. I did them regularly...
dacarte3, do you ever have a "crawling" feeling, too? mareish, since your crawling/itching went away with Doxy, it would have seemed to be a Lyme symptom. As I'm hitting Lyme hard now with Bicillin,...
Astro, I have been lax on the detoxing the last 4 days as we've been traveling. So that, coupled with the recent injection/new round of die-off, could be a big part of this. Will up the detox, and do...
Has anyone experienced itchy skin with Lyme/Co's? Is this a neurological symptom? Can it be a part of a herx? One of my worst symptoms is what I call "burning brain." It feels like my scalp/forehead...
I'm with you on the New Year -- I am set for 2018 being a much better year for so many of us!...
I live in MA and have researched a lot of providers here. Very few take insurance. There is one that I saw briefly in central MA. I can share his name with you/information about him if you would like...
Hi dbwilco. I was on oral ABX for 10 months, and had to stop them in the end due to severe gastritis. I had all of the symptoms you mentioned after having been on several meds -- doxy, omnicef,...
Inner vibration is one of my main symptoms right now. I don't have it in my nose, but rather through my chest or lower legs. It seems to be a very common Lyme symptom regardless of location....
Hi Tonyaraven, I just wanted to offer a little support. I, too, experience depression during a flare or herx. Depression isn't one of my major symptoms, but in those moments, it can be overwhelming....
Celebrating with both of you! How the sunshine and longer days tends to lift one's mood, especially here in New England where those gray skies can settle in for days. Here's to a hopeful and healthy...
Hi Mergirl, I understand how you are feeling. It's so hard to be patient when you're feeling unwell -- particularly when brain symptoms are at their worst. That said, 2 months of treatment is not a...
Hi SarahJane, my LLMD has me weaning off Zoloft. I was on 50 mg for 3 weeks, but had to stop due to stomach upset and horrible waves of dizziness (especially when I moved my eyes). He initially had...
PeteZa, thank you for reminding us that we can heal and not to give up. So many of us need to hear that on a regular basis! Woodduck 12, neuro issues are my worst right now -- tingling, burning,...
BabsBunny, how long did it take for your dizziness from SSRI withdrawal take to calm down?...
Hi Sarah, I don't have a lot of answers for you, but wanted to say that I'm sorry for what you're going through. It's really hard to figure out how to move forward when you're not sure what's going...
After 9 months of treating with oral antibiotics, I had to stop my Rx due to severe gastritis (I am now on herbs and IM Bicillin shots). To heal my gut, I worked with a naturopath to figure out what...
Let's just hope Santa never gets Lyme! :)...
Thanks for the tip on the parasite cleanse. I'm glad you were able to set-up your tree. That's an accomplishment! I'm sorry that you ended the evening in pain, however. Hang in there. I have been...
P. I'm so sorry to hear this. You need to do what is best for you, and I wish the circumstances that have led you to this decision were different. I have learned a lot from you and appreciate you...
Hi Planny, Lyme/Co's have definitely affected my cycle, but the JK hasn't to date, and I've been on it for several months....
Thanks again, Kat! Appreciate all of your thoughts....
Thanks, Kat. That's quite a memory, if you ask me! It sounds like you're on a solid herbal regimen. Do you think adding the herbs has been a game changer? I've been on Doxy, Azithromycin/Mepron...
Astro -- such good information there. Yes, what you reference by way of the T4 to T3 conversion is what I am addressing. I also had my adrenals tested via the "spit test" and was found to have low...
Kat1000 -- would you share what herbs you are using for Bart? Thanks....
Hi Astro, I just bought "Melissa Supreme" by Gaia. It includes: Servings (40 drops) per container: 22.5 40 drops contain: Proprietary Extract Blend: Lemon Balm herb* (Melissa officinalis) German...
Ashley, that's a long day, even when we're feeling well. I hope you're employer will be helpful in allowing you to cut back. I work full-time heading up government relations for an organization. I...
Thanks for pointing these out, Jo. This was definitely a day that I needed a dose of inspiration! Happy for evianangel and Artermix! Hopeful for the rest of us....
Peteza, I will look for that happy place. It's got to be out there! Goshawk, your post had me in tears. It's been that type of day. I can't tell you how much I appreciate your kindness and support....
Hi Jamie, I know others will be along to welcome you to the forum, direct you to resources and offer feedback. But, I'm glad you found us. I can tell you that my experience was very similar to yours...
Thanks, SC. Therapy feels indulgent, but I think I've kept a lot bottled up over the last year in not wanting to burden friends with concerns about this protracted health battle. I know I need to...
Lila, please don't feel isolated. We're always here to lend a kind ear, offer suggestions when we can and support when we can't. I, too, have had this intermittent pain under my left rib. I mentioned...
Hibee -- thanks for your reassurance and support. My MD just got back to me and did indeed recommended 25 mg for a week to 10 days to wean off. I haven't had to manage anxiety in the past, but can...
Rikky -- I have Bartonella, too. I haven't even begun to treat it. I treated Babesia for over 6 months, and haven't had any symptoms of that for the last 3. So, I'm pretty sure I'm dealing with Lyme...
PeteZa, do you know if BB Toxease can cause a herx? I assumed by the ingredients that it would help cleanse, but not kill bacteria. I was going to start with one drop of it, in combination with my...
I don't know how to keep doing this. My LLMD put me on Zoloft for Lyme-anxiety, which emerged in force in the last 3 months as I have been going after Lyme with Bicillin shots. The prior 9 months, it...
Hi PeteZa, It's good to hear from you! We've missed you. I'm sorry your husband relapsed/flared, but so glad to hear he is back on track. I might try Toxease GL. I've looking at that and the Jernigan...
Thanks, Scaredy, for your response. I've never had anxiety before contracting Lyme Disease. It's a whole new world for me. And, having to manage Lyme and anxiety at the same time is in-and-of-itself...
I'm new to this forum. I have Lyme related anxiety and my MD put me on Zoloft (50 mg). I started at 25 mg, and over the course of a week moved up to 50 mg. I've been on 50 mg for the last 2 weeks and...
I use Great Lakes collagen daily, and have been for a couple of months. I haven't noticed any major change, but I slip it into my morning detox tea (how I miss a good cup of coffee), and figure it...
That is a good realization! I'm treating Lyme with Bicillin injections right now, and my herxes are flaring my anxiety like never before. I never had anxiety when I was treating Babesia, but it's...
Sorry, Missouri, I meant to address that second point to Traci! Love Lyme, I barely know my own name today....
Astroman, can you come and cook at our house? Those chicken and shrimp tacos sound amazing! MO, I went crazy, in the beginning of my Lyme journey, 1 year ago, and cut out everything -- gluten, dairy,...
Thanks, Art. I'll keep using the one at my gym until I can figure out how best to access an infrared sauna. I know it's not the same, but hopefully still has some affect in the meantime....
Counting, a friend just recommended Gaia's Melissa Supreme to me for anxiety, and I just ordered some online. Here are the ingredients: Supplement Facts Servings (40 drops) per container: 22.5 40...
Thank you. I'm doing a lot to detox in terms of herbs/supplements, epsom salt baths, dry brushing ... you name it. I thought the sauna at my gym would be helpful, but now understand that the Infrared...
Hi, for those of you who have tried infrared saunas, could you share your experience? I'm reaching out to a wellness center tomorrow that offers infrared sauna packages. I'm really hoping it can help...
I took Azithromycin with it, and at times had added in Ceftin and Bactrim (for Lyme and Bart). The Mepron/Zith mix definitely helped me heal from Babesia. It seems like there are several good...