My update: I am in a clinical trial for MLN0002 for my crohn's disease. I've been in it for about 4 months now and am on the maintainance phase, which means an infusion about ever 4 weeks. Right...
Thanks for the replies. I have to be off the Cimzia for 2 months before starting the trial, so it will be late September when I start. The drug is suppose to not cross over into the brain, thereby...
I was able to qualify for free Cimzia and the home nurse who gave me the injections. Contact Cimplicity, the maker of Cimzia....
I've been on Cimzia for 6 months and it is not working for me. My gi said today there were no other treatment options for me (I do not have insurance). She suggested a clinical trial for Vedolizumab...
G2 is much better than regular gatoraide....
I took it for about 5 years and it never helped me. As I tapered off of it my symptoms got better....
I just had my first 4 week injections. I haven't really had injection site problems. I'm not sure it is helping me yet, I have been under a lot of extra stress and going 5-10 times a day. Still...
I'm on Cimzia, I've had 3 sets of shots so far. I try not to think about the bad possible side effects. Just wash your hands in hot water alot and go to the doctor if you feel sick....
I am on Cizmia free and they pay for my nurse also. If I had a problem I would call Cimplicity, but I also have the number of the nurses who come out....
I was approved for financial aide for Cimzia, I do not have insurance. I get my third set of shots this afternoon. So far my joint pain is much worse, my tendinitis is worse and my guts are no...
I was on it. It is supposed to not have the bad side effects of pred but it is still a steroid. I had the bad side effects same as I did on the pred, including worsening of my depression. I will not...
I have crohn's, about 10 years now and I am hypothyroid. Mine is due to nodules growing on the thyroid and slowly killing it. I have been on synthroid for about 5 years....
Hi TBW. I hope the Humira helps you. Today I get my second round of Cimzia shots. I had the first shots 2 weeks ago and then again in two weeks. It may be making my joint pain worse though. I'm...
Hey Teddybearweiser. I am going to my gi today to see about starting Cimzia. I have been unemployed and uninsured for over a year now and should be able to get it free from the drug company. After a...
I have crohn's in my small intestine. I was on prednisone for about a year and the last scope I had done they found 2 ulcers in that area. I am going to gastro today and I am going to try Cimzia if...
I picked bluemeanies because the day I signed up I was feeling pretty blue and not plesant so bluemeanies popped in my head. Mostly due to the Beatles bluemeanies in Yellow Submarine. I have no job...
Hi all, I am going to start Cimzia soon and was wondering how the people who take it are doing on it. This will be my first biologic drug, steroids are not working and I've got ulcers in my small...
I had been on pred for about ten months and the day after I stopped it I started Entocort, now I am tapering off of it and going to try Cimzia. Diabieties runs in my family and my blood sugar went up...
You can try enteric coated fish oil. It is supposed to survive the stomach and dissolve in the intestiles and does not usually give you the fishy tasting burps....
The commercials for the lap band say they are not suitable for people with gastrointestinal problems....
I have it in my left jaw also and basiclly just live with the pain it causes. When it gets real bad I alternate warm and cold on it. I tried mouth guards but spit them out when sleeping,...
I am a CCFA member also....
This is a very common problem and there isn't really anything to do about it. I try putting a cool wet rag around my neck but then the pillow gets wet. I've had to change night clothes three times in...
I need a miracle every day! Hee hee hee, I had not heard this one....
The enthesis can occur when the crohn's is not so active. Not all my joints are affected. Usually it's just a few spots at a time. Like when I go to turn a door knob it hurts. I have noticed that...
I have the same problem. The tendins in my wrists, palms, and fingers hurt the worst, it can take your breath away at times. I also have achelies tendinitis which has caused a very painful bone spur...
Glad to hear you are not suffering as you were. Hope all continues to go good....
I take my Remeron at night before bed because it can help make me sleepy....
I am on 25mg of pred a day and am having a bloating problem too. I start out in the morning on the third hole in my belt and end up at the first notch by the end of the day....
I live in Broomfield, CO and am moving to the Loveland area soon. I see a gastroenterologist with Kaiser Permante (Dr. Drake) at the Rock Creek Center in Lafayette off HWY 287. I can send you her...
I have been having tendinitis problems for a couple of years. Occasionally it is in my elbow but mostly it affects my fingers, hands and wrists. I also have achellies tendinitis and it has caused a...
Glad to hear you are doing better. May it last a long time. I am still job hunting but have a second interview today with a company. I was able to get my unemployment started again. Apparently the...
I have had crohn's for around 8 years. For the past two years I have been having reoccuring tendinitis. Usually it is in my hands, wrists or feet. I have had it in my elbow also. Currently I am...
I have been taking Celexa for a few years now. I am doing well on it. I also take Remeron for depression and the combo works for me. I hope you are feeling better soon....
I am hypothyroid because I am growing nodules on my thyroid and they are slowly killing it. It is not auto-immune related....
My two cats are quite entertaining and the unconditional love is the best....
I decided to go back to work for them, and I would have started two weeks ago. The Friday night before , I started throwing up for four hours every night for eight out of ten nights. I had to call in...
I have discovered that I can eat some fruit if it is dried. I can tolerate banana chips and dried cranberries. Not dried apples though, those I don't digest at all. Just try some and see how you do...
I was fired two weeks ago, supposedly for being sick but I think it was a financial problem on their part. So I too am looking for a new job. Hopefully you will find one you like better....
I haven't been by the past two weeks as I had a bad reaction to a medication for my crohn's disease. I was starting Imuran and became very ill over the past 10 days. I was spending every night from...
I was looking up 6-mp earlier today and am pretty sure I saw something about chicken pox and 6-mp. I could be wrong but I had searched 6-mp on the internet and found the info there....
Gatoraide has way too much sugar, more than a coke. Juice also is as bad as a coke, compare ingredients. Drinking Gatoraide pushed my father over the diabieties line and when I went to the doctor for...
I was wondering if anyone here has gotten really sick from Imuran. I started 150 mg/day a few weeks ago and took it with dinner. Ten days ago I started throwing up and dry heaving for 4 hour hours at...
Hee hee hee. Thanks for the laugh....
Update: my boss called and wants me to come back to work so I'm going to give it a try and see how things go. I am having a bad crohn's flare from all this stress and need my doctors and meds right...
So my boss who just fired me called me friday morning and wants me to come back. After thinking about it for several hours I decided to give it a try. I am now in a bad flare. I spent this morning...
Thanks for the replies. I really don't want to work for those people again. I think what really happened was that one guy died and they had to pay out his insurance, my boss fell at work and broke...
Hi all, Well my crohn's had flared and I'm on 30mg of pred a day and starting Imuran. I have missed some work due to being sick and doctor appointments. Yesterday I was fired for missing work. At the...
I eat oatmeal except for the ones with dried apples in it. I do not digest them at all. The other flavors I do ok with....
I haven't posted here lately because I had been doing pretty well with my anxiety and panic problems. My crohn's disease flared though and I am on 30 mg of prednisone a day as well as starting...